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The Rebellious Boob Chronicles: My Journey, in Poetry, through the Eyes of a Friend

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If there is one thing that I am blessed with in life, it is the treasure of great family and friends! There is no way that I would have ever been able to make it this far in my journey of life as a whole, much less this adventure through breast cancer without the love and support of all who surround me. I covet every single gesture of love, support and encouragement, each prayer muttered on my behalf, every phone call, text, message and visit; every single card, note and gift.  I am honored when someone takes a moment to share with me how something I have said or written touches their heart and inspires their soul. Yesterday one of my dear girl friends carved time in her day to come and fellowship with me during my incarceration (aka…recovery time from my double mastectomy surgery – this girl was not made to stay immobile and locked inside! Yikes!) Not only did she bless me with much needed conversation and fellowship, she came bearing gifts. She had a pillow made with the above picture on it and wrote me this poem. WOW! I do not have sufficient words to express how deeply this touched my heart!

This journey has been a mixture of  beautiful roses and ferocious thorns. There have been times when I have felt like a complete and total failure as a woman (it can be challenging to your femininity when you lose your hair, your eyebrows, your eyelashes and your boobs!!), as a mother (what mom can’t take care of her children when THEY are sick??), a momsy (do you know how hard it is to tell your precious grandchildren you don’t feel like playing??), a daughter (I am thankful for a momma who takes care of me no matter what age I am!), a sister (that moment when you can’t muster up the strength to go to a family get together) a companion (ah the adjustments and grace it takes to cater to a sick girlfriend!) and a friend (I am so not used to being on the receiving end of needing help!).  In those moments of struggle, I can be my worst critic while fighting through the darkness and depression. I would think “me, positive? strong? victorious? yeah right! more like exhausted! weak! defeated!”

And then, there are those golden moments, when God sits you down and allows you to look at your self through the eyes of someone else. When He calls for a ‘pause’ in your self criticism and saturates your soul with words of reassurance. A moment that refreshes the core of your being. I share this poem with you,  this priceless gift, written for me and about me. I do a lot of writing and sharing about myself and my journey but what a gift to see myself through the eyes of someone else. As I heard the words, I sat in awe, speechless, and weeping at the goodness of a caring God and the obedience of a loving friend who was willing to be a conduit of His grace. I sat with my heart overflowing with thankfulness for those intimate moments shared between two women, with our hearts laid bare before each other. I sat there blessed, refreshed and renewed.

By Joyce Weldon, my dear friend and anointed poet

She knew her cancer would be like risking a difficult climb.
After all she was a mountain thinker
Not a valley sinker.
Her thoughts were used to soaring to new heights
She knew the value to flee or to take flight.

Now will this journey choose for her the mountain of the small place?
Will she just be satisfied with the fertile lowlands, plushes,
ready-made she face?
Throughout life she had been a friend of struggle
Maybe every once in a while to have with it a few snuggles.

But even in her broken body she continued to smile
Instead of looking back toward the valley she looked upward to the mountain with a whisper, “in a little while.”
Thinking small was not her style.
No small dreams.
No small outlook.
No small aspirations.
No small faith and no small vision.
Just a new decision.

She took the flavor of God’s spirit enhanced
Whatever lives it touches from the depth of her mind to the depths of her soul.
She let it go.

From the perspective of the heights
She gave cancer new sight
No matter the outcome to remain in steadfast, unyielding,
Unmovable, unshakable, and useful for flavoring other lives
That be sprinkled into the world cries.
In the shadow of the mountain where bushes once burned
And voices thundered and the finger of God was carved in granite
the direction of where freedom lies.

Life lives…

July 18 2019

 
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Posted by on July 19, 2019 in Uncategorized

 

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The Rebellious Boob Chronicles: Chemotherapy and Losing Your Hair

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I will began this blog by saying that it has taken me 4 ½ months to be able to complete and post this blog. I began writing it shortly after we shaved my hair off on March 4th, yet every time I sat down to pen my thoughts, I would either draw a blank or would be so overcome with emotion that I just couldn’t finish. Losing your hair isn’t just a physical side effect of chemotherapy, it is an emotional one, one that reaches down into the depths of your soul and touches the heart of your identity. It’s visible evidence that something isn’t quite right in your body. Hair loss isn’t limited to just your head either. Eventually you lose your eyebrows and your eyelashes (I miss them!) and your body hair (I won’t complain about not having to shave my legs for months!! ) It changes your appearance and it takes time to get used to it. Months later I have grown accustomed to my bald head. I’m much more comfortable being without a head covering around my family and friends, letting that bald, round head shine – especially when it’s blazing hot out and I am crawling up the trail, literally! I am able to look in the mirror and most times I don’t even bother with the fact that I have no hair. I discovered that I can take naps without having to worry about messing my hair up. I can drive with the window down and let the wind blow as much as it wants to. I can take showers at night and not have to fool with fixing my hair in the mornings, thus getting to sleep later. The perks have been many. So as I post this today, I am thankful for the progressive adjustments. I am thankful for those who contributed to my hat fund and collection and allowed me to look fashionable these past months. I am thankful that I am 3 weeks post-chemotherapy and I have a nice little layer of baby hair growing back already. I am thankful for all of the positive words and encouragement to boost my struggling self-esteem and keep me smiling. Most of all, I am thankful to finish this blog and finally get the words out of my soul that have been churning on the inside for so long. And I am thankful for YOU for sharing my journey with me.

Rebellious Boob Chronicles – Chemotherapy and Losing Your Hair

One of the things I dreaded most about chemotherapy was losing my hair. Even before it was confirmed that I had cancer, I had nightmares about being bald.  Once I received the diagnosis I would catch myself standing in front of the mirror, holding all of my hair back, trying to imagine what I would look like bald. My kids would walk by and be like…mom what are you doing? (Insert a strange look on their face)

Once the news was out and I started chemotherapy, everyone knew it was inevitable. I have the best of friends and every one would do their best to console me. “It will grow back!” or “Ah, It’s just hair!” they would say. The truth is, yes it will grow back, however to say that my hair is just hair is quite an understatement. I’ve had a love/hate relationship with my hair since it started growing 49 years ago and it became a part of who I am, a part if my identity.  I’ve had long hair, at one point it was blonde and curly.  However, the older I got and the more I began to discover who I truly am deep on the inside, the shorter and darker my hair got until finally, I found MY hairstyle and it became my icon. People who didn’t know me personally would recognize me by the infamous red streak that I wore forever. My children’s friends would say, “oh yeah, your mom is the one with the short red hair.”  Strangers would stop me and compliment me on how much they liked my hair. Well most strangers were in my favor. I remember once a man stopped me in the grocery store and felt the need to tell me that most men didn’t like women with short hair. I come a frog’s hair of letting him know that most women didn’t like men with short …., but I refrained and just told him it was okay, that I didn’t like most men and went my merry way without cutting the fool. So without much ado about nothing, I think you get the point. My hair was an important part of me.

At my first visit with my oncologist, my doctor was gracious enough to talk to me about the most common side effects of chemotherapy and how long it usually started for them to show up. Hair loss usually occurs 10 to 14 days after the first treatment. Wow. I thought I would have longer than that but I began to mentally prepare myself for the loss that was coming.  At first it was just a hair or two here and there that I would find or would stick to my hands. However, the second weekend after my first treatment, I was getting ready for an adventure and when I went to fluff my hair glue through my hair, I brought my hands down and they were covered in my dark brown locks. Ugh! Day after day the same scenario until I came to the conclusion that the inevitable was happening and it was time to take control. Thus I planned an “Ode to my hair” head shaving party for March 4th, the evening of my second chemotherapy treatment.

My kiddos, my hairdresser, and my grand babies were present and some of my awesome girlfriends came bearing gifts of wine, appetizers and desserts. I parked a chair in the center of the kitchen and the party began. The buzz of the clippers hummed a somber melody. We shared lots of laughter and a few tears were shed.  We made videos and took selfies. My oldest son, whose hair was way down his back, shaved his head also in honor of his momma. I was surrounded by tons of love and support and it made such a bittersweet event and that first glance in the mirror a little more bearable. It was done. My hair was gone. I was bald.

Now came the rush of fears. Would people look at me different? Would my boyfriend struggle with having a bald girlfriend? Would my friends avoid being seen with me? And of course, my greatest fear about it all was how would my children and grandchildren  react to having a bald momma and Momsy. I know, it sounds silly to even say that out loud, but every day and especially through this whole ordeal, they have been and always will be my greatest concern. It wasn’t long after we finished with the new hairless style that my phone starting blowing up with notifications. My children had posted some of the selfies we took on their social media. Yikes! I admit that at first I was a little shocked. I wasn’t sure that I was ready for thousands of people to see me with no hair! However, as I began to read their proclamations of love, support, and encouragement and the sweet, positive responses from others,  my heart was flooded with gratitude. They were proud of their momma, hair or no hair, and they wanted their world to know it! I was overwhelmed and the fears I had melted away. I was thankful. I was blessed beyond measure. I knew in those precious moments that no matter what I had to face through this journey that I would be okay, and more importantly, I knew they would be okay.  I knew that someday soon, I would be better than I was at this moment.

March 4, 2019

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My Kaley

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My Olivia

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My Kaler

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Getting a haircut!

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The party crowd!

 
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Posted by on July 2, 2019 in Uncategorized

 

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The Rebellious Boob Chronicles: Round 5 – The Emotions of Chemotherapy

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We all are pretty familiar with the fact that chemotherapy wreaks havoc on the physical body. The chemicals are effective in attacking the cancer cells, with the purpose of shrinking them and ultimately killing them. Chemotherapy targets cells that grow and divide quickly, like cancer cells, however it cannot tell the difference between a cancer cell and other fast growing cells such as those of the skin, hair, intestines and bone marrow (red blood cells producer). Thus it attacks them also and the side effects, as I have so willingly  shared, can be quite brutal. The physical body shares in the benefits of the drugs along with the misfortunes of poisonous chemicals being pumped through your veins.

The mind is a powerful tool that can get you through the worst of scenarios. One of the most beneficial things you can do throughout the process of treatments is to maintain a positive attitude and outlook. I strive daily to focus on the benefits while fighting through the hardships. It has not been easy and I will not for one moment pretend that is has been. The first four treatments were a shock to my physical body, but the fifth treatment brought some struggles with it that I wasn’t quite prepared for. My physical body has been pushed to limits I would have never imagined that any human should have to endure. The sore mouth, the ridiculous weight loss each time, the achy joints, the loss of appetite, the inability to eat even if I am hungry, the incessive stomach cramps and diarrhea, the skin rash, the hair loss, the eyeballs burning like you are pouring fire and gasoline in them, the loud and random ringing in my ears, my feet and legs swelling up like tree trunks, neuropathy in my fingertips and the skin under my fingernails and toenails dying, muscle spasms from Hades. I’m sure I have left some things out, but the one that has annoyed me the most, that one side effect that I have wrestled with more so than any of the others…the fatigue, that chronic fatigue, that shut-your-body-down-where-even-sleeping-wears-you-out fatigue. When your body is beyond tired and you can do absolutely nothing, there comes a point that the fatigue begins to play on your mindset. You go from being supermom who takes care of everyone and everything to the mom who barely has the strength to take care of herself much less anyone or anything else. From the momsy who is fun and adventurous to the momsy who can’t even walk outside to watch you do your tricks on the trampoline. From the friend who is always there doing for others to the friend who needs others to do for her. From being the girl who tried the hardest climbing route just to challenge herself to being the girl that can barely climb in and out of bed. From being the ambitious, adventurous soul to being the one who has to lag behind and wait while everyone else completes hikes that you just can’t handle. During those moments when I am lying in bed day after day, I am too exhausted to get up and too exhausted to sleep and all I can do is think, my mind becomes very vulnerable. Darkness wraps itself around me and my thoughts become clouded with all the things I cannot do…

I hear my grand babies outside playing and I can’t even muster up enough strength to get up to hug them.

I can’t even remember the last time I cooked a good meal for my children. (let me insert that I am so very thankful for the friends who participate in the meal train and have cooked for us!)

It’s Friday and I normally drive over to see my sweet boyfriend but I can’t even drive 5 minutes from work to home without needing a two hour nap.

My friends are going hiking and I can’t even walk to the bathroom without feeling like I am dying.

I try to participate in outings and be my sunshiny self, but inside I am dying because at any given moment I feel like I am going to pass flat out.

I want to go eat with my friends but I am afraid I will have an ungodly crap attack before I make it out of the restaurant so I just stay home…again.

My son has a baseball game but I have to sit at the car and watch him because if I walk into the stadium, I won’t have the energy to walk back out and drive home.

My dog wants to play tug of war but I can’t even hold the rope because my arms are too tired.

I long for the company and fellowship with friends but I’m so tired I don’t even feel like carrying on a conversation.

So many things I want to do, but can’t. Little things that mean a lot to me.

So I lay there exhausted. I feel weak. I feel useless. I feel worthless. I feel insignificant. I feel ugly. I feel stupid. I feel lonely. I feel lost. I feel disconnected. My fears, those ones I don’t dare speak out loud, overtake me. I cry.  I just want to be held. I need someone else to be strong for me, just for a little while. I just want to feel like myself again. I feel ashamed. The darkness overwhelms me. I don’t want anyone to know. I am so tired. I pray. I quote scripture. I speak positive. I turn on praise and worship music. I pull myself together. I close my eyes. I tell myself that tomorrow is another day and I fall asleep.

I wake up, exhausted, yet determined to face the day.

I pray, I focus, and although I am struggling with the lingering darkness, I remind myself of all of the things that I have been able to continue doing despite the fact that I am fighting a vicious fire breathing dragon that is healing  my body while at the same time breaking me down and wreaking havoc upon me (don’t you just love the dramatics??)…

Every three weeks for 6+ hours I have gotten to enjoy time with one of my dearest friends in the whole wide world. It may possibly be against the law at how much we have laughed and cried and carried on while I’m sitting in a chair getting poison pumped through my veins (more dramatics!)

I have been able to go watch my grand babies play t-ball.

I’ve been able to go to all of my son’s baseball games (except last week when I was out of town), even if I do have to cheer him on from the car. And he scored two home runs in the last game!

I’ve continued to work full-time through this process and have only missed two full days of work.

I’ve traveled twice for work related training’s, and it rocks when your training is in sunny Orlando Florida! (AND I got to spend precious time with a dear long distance friend and her family! Woot woot!)

I got to see the sunrise over the ocean’s horizon! Breathtaking!

I’ve spent precious time with my children and enjoyed their company and help.

I have only missed 3 full weekends in the woods out of 16 (and some of those were just rainy days) . The odds are in my favor!

I’ve hiked 23 times since my first treatment, including 7 off trail gorge hikes: Dellinger Falls, Piano Rock, Crevasse Point up Pinchin (what the heck fire was I thinking??), Ziggarut  (not to mention I led the first known ascent and stood on top!), Bug Out Point – twice, the Linville Crag area and the Castle and Cracker Jack Point. I’ve rock climbed 4 times. Seen 9 different waterfalls and went kayaking with my son. Thank you Lord for your grace to continue to do the things that feed my soul!

I got to see the most beautiful sanctuary I have ever laid eyes on! Quiet Reflections Retreat near Burnsville, NC is a must to go see. Thank you David!

I’ve enjoyed special times with family and friends on random occasions and planned occasions.

I’ve been held by the strongest of arms and wrapped up in peace and comfort.  Again, thank you David!

My doggy has snuggled with me during those moments that I needed him most.

I have the best Tribe ever. They are always willing accommodate me and structure hikes to my level.

I’ve met so many people that have struggled with cancer and have been inspired by their stories and friendship.

I’ve had the privilege of praying with strangers in grocery stores.

I’ve made new friends that have already become very dear to me.

I’ve been touched by so much kindness that my heart overflows.

I’ve had so many ‘God moments’ where His presence has just been incredible.

I’ve been showered with so much love, support, prayers, encouragement, and thoughtfulness sent my way daily!

I’ve been blessed beyond measure!

So, although I fight the darkness at times when exhaustion overtakes me, I wake up each morning reminding myself that it’s a new day, with new mercies, sufficient grace and strength for the day. I encourage myself that this too shall pass and one day soon I will be much better than I am at this moment.

Slay the dragon. Seize the day. Conquer the darkness. Be the light!

May 6, 2019

Why am I discouraged? Why is my heart so sad? I will put my hope in God! I will praise him again— my Savior and God. Psalm 42:5 The Living Translation

 
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Posted by on June 4, 2019 in Uncategorized

 

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The Rebellious Boob Chronicles: Chemotherapy Round 4 – Me versus the Brick Wall

Round 4 of chemotherapy got off to a smooth start. The Thursday afterwards I was feeling energized and the sun was shining, so after work I decided to work out in my yard weeding, blowing leaves and mowing. I was supposed to wait on my son to get home to help me, however being the ambitious soul that I am, I began without him. It felt so good to be outside being active that I got carried away. I worked for 3 ½ hours and even proceeded to mow my front yard (at sloth speed I might add!) but nevertheless I got it done and felt quite accomplished.

Friday came and I was a little tired but still felt pretty good so I headed to North Carolina for a weekend of adventures. Saturday morning was a different story. We had a hike planned and I was excited to get out before the rain settled in. Our destination was English Falls, a short but moderately strenuous pull back out of the falls. I had done it once before and knew it would be a small challenge but nothing that I couldn’t handle. As I was getting ready that morning, I felt tired and struggled with standing long enough to get dressed and ready. My ambitious heart once again threw caution to the wind and urged me to proceed. We got to the trailhead and as we headed down the steep trail to the fall, I sensed that I was in a little bit of trouble. My legs were becoming very fatigued and I had to even stop a couple of times heading down. The coming back out of there was a complete struggle! What should have taken a quick 15 to 20 minutes became double that and there were moments I found myself getting as low to the ground as possible and almost crawling out. My legs were on the verge of completely rebelling against me, my heart felt like it would explode out of my chest and I became very dizzy each time I stood straight up. Suddenly concern was on high alert yet I was bound and determined to make it up out of there and not become the chemo poster child for the next Search and Rescue call!

When I finally made it to the guardrail at the top of the trailhead, my body went into complete rebellion. I slumped over and dry heaved for several minutes before I could make the short distance to the truck to fall into the front seat. Whew! What was I thinking? I just knew however, that after a bite to eat, I would feel fine again…hahahaha! For the rest of the evening I was completely useless. The recliner and I became best friends and I lay for hours doing absolutely nothing. Easter Sunday morning came and I had to drive back home from North Carolina to make dinner for my family, which I was highly looking forward to! The hour and a half drive that I have done hundreds of times before felt like a cross country extravaganza. I had to call a girlfriend and talk to her the entire way just to ensure that I made it home without any mishaps. Changing gears in my car felt like doing 400 pound leg presses. I was exhausted and it wasn’t even noon. When I made it to Kingsport, instead of going straight home, yeah you guessed it, ambition took over and thought it was a great idea to go ahead and head to the grocery store so I wouldn’t have to run back out.

I struggled pushing the buggy, walking around to grab the few items that I needed and I felt faint and self-conscious that everyone I passed could tell I was about to fall in the floor. Suddenly I hit a mammoth size brick wall, I knew I just couldn’t finish the task and I called my youngest daughter and asked her to come to my rescue. In just a few short minutes she and her boyfriend arrived to finish shopping and I went home and straight to bed. My oldest daughter came to the house and they proceeded to prepare the family dinner for me that I was looking so forward to cooking. One of my passions is cooking and hosting my company, but on this particular Easter Sunday, fatigue had overcome me and I could do nothing. 5 o’clock came and I was able to get up and sit like a knot on a log with everyone and fellowship. I felt terrible and could barely even get up and fix a plate of food that I wasn’t going to be able to eat, thanks to chemotherapy mouth. However I felt even more terrible that my family had to see me in such a comatose state! I hadn’t experienced this kind of fatigue since I started treatments! After everyone left, I retreated back to my bed while my daughter and her sweet girlfriend cleaned up my kitchen for me. I got up long enough to spend some time with my David, as he drove from North Carolina to see me, and after he left it was bedtime, again for the umpteenth time that day. I laid there knowing that when Monday morning came, I would feel much better! Insert another hahahahaha!

Come Monday morning, getting up and walking 8 steps to my bathroom felt like an unconquerable task. I was so weak and became dizzy to the point that I didn’t think I would make it back to my room. I was able to manage enough strength to get my youngest son to school but had to come straight back home and lay down again before I could even fix my smoothie for breakfast. Sleep an hour, get up and fix my smoothie. Lay down an hour before I had enough strength to even drink it. Drink it, lay down another hour before I could muster up the strength to shower. Lay back down an hour before I could get dressed and head to the doctor for labs and fluids to see what the world was going on with my body. My oldest son was gracious enough to take the day off work to take me to the doctor or I would have never made the trip on my own. 5 hours at the doctor, labs that showed low potassium and low red blood count, fluids, exhaustion and back home to the old faithful bed. For several days it was a struggle to get up and make it to work only to come straight home and retreat back into my bed. It became a humorous question when my kids would get home and say, ”hey mom, what are you doing?” and my answer was “absolutely nothing!” I am never one to do absolutely nothing! I am use to working until I’m done, not until my body says no. However for several days, my body refused to do much of anything and I had to succumb to the exhaustion and lay down more than I wanted to!

As the week progressed and the weekend came, I began to feel a little better and regain some energy. My appetite started to come back and I was finally able to eat something besides protein shakes and soups. Saturday came and I spent the day taking family pictures for my daughter, prom pictures for my son and then drove to North Carolina to spend the night and attempt a very easy adventure for Sunday. We ended up hiking to the Chimneys and setting up top ropes to do some climbing with our Tribe, however I didn’t even take my climbing equipment. My goal was to set up a hammock, take some pictures and just soak up the spring sun and fresh air.  Let me insert how hard it was to just sit and observe! Inside my ambitious heart was dying to get on the rock, but for once in my life, I listened to my head and not my heart and opted to not exhaust myself and get back in the shape that I had experienced over the last week.

The next week was a great week of recouping and eating all the stuff I had been craving while lying in my bed exhausted and hangry the week before. Work went well, Friday came and I had decided to take a vacation day to enjoy a three day weekend before the next round of chemical warfare. I was able to enjoy a day of climbing, a Saturday of waterfall chasing and a Sunday hike on one of my favorite trails. It was an adjustment for my mind to follow the much slower pace that my body demanded, but I am determined to continue to not only seek my healing through the chemicals I am relying on to zap the cancer cells, but to also continue saturating my soul in the healing powers of nature that I have grown so fondly of over the past several years. In order to do that, it is necessary for me to listen to my body, to slow down, and to succumb to the rest that is beckoning me. I have to be wise on how I spend my energy, knowing that it is limited. It isn’t easy by any means so I face the battle with prayer for my mindset and to not begrudge that rest that my body desperately needs. No matter how weary my body grows, and how big the wall seems at times, I must keep my eyes on the prize of being cancer free and remind myself that one day soon, I’ll be better than I am at this moment.

Up next…round 5.

April 15, 2019

 
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Posted by on May 29, 2019 in Uncategorized

 

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The Rebellious Boob Chronicles: The Anatomy of a Selfie

 

My hair is gone.
My eyebrows and eyelashes are thinning.
My cheeks are puffy.
The toxins are breaking my skin out.
I’ve lost weight.
My feet are swollen.
Some days I look in the mirror and I scarcely recognize myself.
I see a cancer patient.
I dig deep.
I hear the inner voice.
I pray for grace.
I pray for joy.
I find strength.
And I remember.
I am Christy.
I am a fighter.
I will prevail.
I will be cancer free and I will be better than I was before I began this journey.
And I smile.

April 11, 2019

 
 

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The Rebellious Boob Chronicles: Chemotherapy – Round 3 – Brutal but Effective

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Round three of chemotherapy was by far the harshest so far. After my treatment on Monday, I woke up with the beginnings of cold/allergies on Tuesday morning. I usually get one cold every 3 to 4 years at the most and never deal with allergies, yet this is the second cold I have had in a month. It lasted for two weeks (and the allergies are still lingering) and sucked the sap right out of me, ugh! Let me insert I also never take any over the counter cold medications but after drinking my apple cider vinegar/honey and lemon water for days to no avail, I resorted to some Alka-Seltzer plus severe cold (to no avail I might add). I missed another weekend of adventuring and I was nonetheless unhappy about that and I found myself feeling angry.

The second thing I dealt with was the mouth issue again. Thankfully using the Miracle Mouthwash at night before going to bed and the Biotene religiously throughout the day, although my mouth was raw, I was able to maintain enough where I did not get any sores. However, the metal taste was so prevalent this time and I spent two weeks not being able to eat anything. EVERYTHING I ate and drank, even water, tasted like metal, and I used plastic silverware! I survived on protein smoothies, jello and pudding for two weeks.

The little bit of food I was able to choke down stayed on my stomach for about 5 minutes and then it was the familiar mad dash to the bathroom, which I seldom won. I had some of the worst stomach cramps I have ever had in my life. I do believe I picked up a stomach virus for a couple of days upon the beloved back door trots side effect of chemotherapy. Yay me, right? Have you ever thrown up so much that you had nothing left in you and the dry heaves come? Well, I didn’t throw up but experienced the same effect on the other end of the spectrum. Hello fuzzy!  And that is all I will say about that. After a few days I found myself frustrated, exhausted, 12 pounds lighter and ‘hangry.’

For someone with my background, the state of being ‘hangry’ is something that I have never been able to quite understand. Why would people get mad when they are hungry? To me, food has never been a source of pleasure or satisfaction.  From the time I was 13 until I was 33, I struggled with anorexia and bulimia. I could go for days without eating but a morsel of food, and when I felt like I did overeat, I took measures to rid my body of what I looked at as my enemy ASAP. It became a lifestyle for me, a second nature so to speak. The only time I was conscious of eating right was throughout my pregnancies, but as soon as my babies were born, I fell right back into the mindset. After coming to terms with the struggle and making a lot of changes over the years, food became a source of maintenance for me. I rarely crave anything and seldom sit down and really enjoy what I am eating. I eat to be healthy (except after a big hike and then I may eat the heck out of a pizza or a big ole burger, fries and cheesecake or pie!) So for me to be hungry to the point that I was angry about it was an extreme. Nevertheless, I was angry.

I am thankful that the week I was in Fort Lauderdale for training, food finally began to taste good again! Every morning I ate the biggest Belgium waffle you have ever laid eyes on and enjoyed every minute of it. One of my fellow trainees even commented on how I seemed to enjoy my waffle each morning, lol. After I told her my dilemma, she completely understood and celebrated with me and my ability to eat. I believe when this season of my life is over, I will actually appreciate the ability to sit down and savor a good meal much more than I ever have.

I experienced nosebleeds for the first time ever in 49 years. I woke up several mornings with the inside of my nose hurting so bad I could hardly touch it. I assumed it was just from the drainage from the cold however, when I went to put some Aquaphor in it to ease the pain, I noticed I had sores all on the inside of my nose and it was blood raw. Ouch! Oh, and all the nose hairs you have in your nose…gone…without a trace.  I blew my nose carefully, 5 minutes later I had a nose bleed that did not won’t to stop. Can someone say angry??

My face broke out like I was a pubescent teenager and I started noticing some small sores on one of my elbows. I developed a pin size rash on most of my body and might I add it itched like a mother cracker! Bruises from hiking and climbing lasted for weeks, and a simple nick on my skin while cutting my toenail turned into an infection by the next morning. Other simple cuts on my finger and a scratch from a cat briar from hiking bled for two dang hours! WTH! My body just seemed to be falling apart more each day. Can someone else say angry???

One morning while getting ready for work, I noticed my eyelashes and eyebrows were thinning very noticeably and my left eyebrow has this bald spot that refuses to be filled in with an eyebrow pencil. Even though I lost 12 pounds, my face felt like it was puffed up like a blowfish and, at times, when I looked in the mirror, I scarcely recognized myself and I struggled to see Christy staring back at me. I found myself, yep you guessed it, angry! and yes, I cried a little.

There were more days than usual that I felt tired, struggling to get through my work days and evenings to the point that I didn’t think I had the energy to drive 6 minutes to get home.  When my friends and family would call, text or message me to encourage me and remind me that I was ‘one of the strongest women they knew”  I wanted to scream and cry because strong was the last thing I was feeling and I somehow felt like I was failing them all. For the first time through the process, I was not just pissed off, I was angry at all that my body was enduring from the side effects of the chemicals.

I would close my eyes at night and thank God that I had made it through another day and when morning rose, I would pray for sufficient grace to make it through the day and for new mercies to find me, and they always did.

One thing I have always been is real, open and honest and, well, the truth isn’t always pretty. In fact reality can be quite harsh at times but I have always found freedom and healing in authenticity no matter how raw it looks sometimes. When people ask me how my treatments are going, I tell them the truth – brutal but effective. Why do I say brutal? This process that is working to save my life also robs me of my dignity at times. It’s a little embarrassing at work when I have to tell my co-worker that works our front desk that I have to run home and change clothes. It robs me of my confidence at times when I look in the mirror and I see a stranger looking back at me. It robs me of my motherhood at times when my children have to take care of themselves when they are sick or when I am too tired to cook a simple meal. (Let me insert – they have been more than understanding and wonderful to help me and take care of me when I need it!) It robs me of my joy at times when my grand babies want to play and I don’t have the energy. Chemotherapy is brutal yet effective and the tumors are shrinking significantly already and for that I am very thankful!

So as I gear up for round 4 today, I will be 2/3’s of the way done with this process. Insert a big Woo flipping Hoo! I remind myself that this process is working to save my life. This process is going to give me many more years of love, adventure, joy and fulfillment. Although this process is brutal it is actually on my side and rooting for me. I prepare myself as I draw strength from the One who holds me in the palm of His hand. I take with me every prayer, positive thought, word of encouragement, phone call, message, card, text, support and love that is so generously being poured out to me by so many, I am beyond blessed! I clothe myself with a warrior spirit ready to fight this dragon called cancer that has invaded my body. I will fight with a vengeance and I WILL win and I WILL be cancer free! In my near future when I am standing on the mountain top again, I will not forget those moments when it felt like that very mountain was crushing me (thank you to a wonderful friend for those words!). I will be thankful and I will be better than I am at this moment.

It is time…Let’s do this! Round 4, here I come!

 

April 15, 2019

 
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Posted by on April 15, 2019 in breast cancer, Uncategorized

 

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The Rebellious Boob Chronicles: The Day I Cried for Me…

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Hearing the words that you have cancer is nothing short of devastating. No matter how much faith you have, no matter how strong you are, no matter how healthy and active you are, no matter how positive you are, no matter how much you have tried to prepare yourself for the worst, it is still quite unsettling to be faced with that worst. When I first felt that something wasn’t quite right with my body, I immediately began to pray. Hebrews 4:16 tells me to “come boldly to the throne of grace to obtain and mercy and grace in a time of need. So, boldly I went to the throne. Not only did I pray, but I petitioned my Lord, with many reasons, why I needed Him to fix whatever was wrong in my body. I know He listened intently like He always does, and somehow I know that because He is sovereign and He knows the end from the beginning, He grieved a little at the prognosis I was getting ready to face. All good fathers hurt when their children go through hardships. Nevertheless, because of His great love, He had prepared me for this journey in so many ways, and for that I am thankful!

On that dreadful day in January when I heard the news, I cried. I cried for my children, who I love more than life and the fact that I would have to tell them what was going on with me. I cried for the fear I would see in their eyes and the sadness that would grip their souls when they had to hear that their mom had cancer. I cried for the memories that would rush back in to their minds from the journey they had walked with their father just a few short years ago. I cried for the moments that they would lay awake and wonder why they had to endure so much in their lives at such young ages. I cried for the moments they would see their mom weak and hurting and not able to do for them like I always do. I cried for all the tears they would shed silently.  I cried for the sacrifices they would make to stand by me and support me and love me through every moment. I cried as I shared the news with them and proclaimed with courage and assurance that, when it was all said and done, and this journey was complete, that everything would be okay and I would be better than I was at this moment.

On that dreadful day in January when I heard the news, I cried. I cried for my grandchildren, so young and innocent who would have to watch their Momsy struggle with a disease called breast cancer that they would have no understanding of. I cried for the moments that they would want me to play and I would be too tired and would have to say no. I cried for the times they couldn’t come see me because they had a simple runny nose or a belly ache. I cried because at times, I wouldn’t be able to hug them and comfort them when they felt bad. I cried for the moments that I couldn’t kiss them because I would be toxic and full of chemicals. I cried at the confusion I would see in their eyes when they would look at me and I had no hair. I cried for the tears they would shed silently. I cried for the sacrifices they would make to stand by me and support me and love me through every moment. I cried as I would somehow have to share the news with them and proclaim with courage and assurance that when this was all said and done, and this journey was complete, that everything would be okay and Momsy would be better than I was at this moment.

On that dreadful day in January when I heard the news, I cried. I cried for my family who are so near and dear to my heart – my mom, sisters and brother, as I would have to share the news with them. I cried for the pain they would feel and the dread I would hear in their voice as no one wants to hear that their daughter or sister has breast cancer. I cried for my mom and the hurt that would fill her mother’s heart for her daughter as she was suffering. I cried for the moments that fear would grip my sisters heart as they wondered if the same prognosis could be theirs also. I cried for the moments they would all feel helpless in helping me. I cried for the tears they would shed silently. I cried for the sacrifices they would make to stand by me and support me and love me through every moment. I cried as I shared the news with them and proclaimed with courage and assurance that, when it was all said and done, and this journey was complete, that everything would be okay and I would be better than I was at this moment.

On that dreadful day in January when I heard the news, I cried. I cried for my David, my companion, my adventurer, my partner whom, because of his closeness to the situation would have to hear the confirmation that yes, our fears were correct and I had breast cancer. I cried for the moments that would be different because I wouldn’t quite be at my best. I cried for the patience, compassion and grace he would have to possess as he watched his girlfriend change in appearance and stature. I cried for the moments that I would need from him far more than I could give. I cried for the moments he would have to endure as I fell apart at the seams in front of him. I cried for the moments in his life that would change because he chose to be mine. I cried for the tears he would shed silently.  I cried for the sacrifices he would make over the next year to stand by my side and support me and love me through every moment. I cried as I shared with him the news and proclaimed with courage and assurance that when it was all said and done, and this journey was complete, that everything would be okay and I would be better than I was at this moment.

On that dreadful day in January when I heard the news, I cried. I cried for my friends who are precious to me and the deep sighs that would escape their souls as they heard that their friend had breast cancer. I cried for the moments they would hurt because I was hurting. I cried for the efforts they would make to go out of their way to provide for me and help me. I cried for the moments they would need me and I wouldn’t know it. I cried for the tears they would shed silently. I cried for the reality we were facing together and the sacrifices they would make to stand by me and support me and love me through every moment. I cried as I shared with them the news and proclaimed with courage and assurance that when it was all said and done, and this journey was complete, that everything would be okay and I would be better than I was at this moment.

On this dreadful day in January, when I heard the news, I cried for my employers and coworkers whom I have grown to adore, as I would have to share with them that I had breast cancer. I cried as I thought about telling them that this person who they had put their trust in to achieve and be successful would be challenged over the next year. I cried as I felt disappointment in my own heart that I would somehow let them down. I cried as I sat in front of them and vowed to continue to work with diligence for the program and position that I was so passionate about. I cried for the tears they would shed silently. I cried for the sacrifices they would make as they chose to stand by me and support me and love me through every moment. I cried as I shared with them the news and proclaimed with courage and assurance that when it was all said and done, and this journey was complete, that everything would be okay and I would be better than I was at this moment.

On that dreadful day in January, when I heard the news, I cried. I cried for everyone that I loved and the changes that would come.  I cried for the sacrifices they would make to stand by me and support me and love me through every moment. I cried each time I shared the news and proclaimed with courage and assurance that when it was all said and done, and this journey was complete, that everything would be okay and I would be better than I was at this moment.

But one day while driving across the mountain, oh on this day, I cried for me. Finally I allowed the tears to fall for me as I faced the news that I had breast cancer. I cried for the sacrifices that I would make as I would walk through each moment of this journey. I cried for the moments that I wouldn’t feel like myself and my strength would wax and wane. I cried for each time I would feel myself struggling and hurting, having no control over what was happening due to the chemicals that were working for me and against me. I cried for the moments that I would look in the mirror and see the weakness in my own eyes and the changes in my appearance. I cried for the moments that I just wouldn’t feel like doing what I wanted to and I would have to surrender and rest. I cried for my body and how hard it had already fought and would have to fight to see me through this battle. I cried for the parts of me that I would inevitably lose. I cried for those moments when I couldn’t take care of my children as I always had for 23 years. I cried for the changes that would take place in me, knowing that I would never be the same again. I cried as I embraced the news that I had breast cancer and I prayed for courage and assurance that when this was all said and done, and this journey was complete, that everything would be okay and that I would be better, much better, than I was at this moment.

So on this day, I cried and I cried for me.

March 3, 2019.

 
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Posted by on March 14, 2019 in breast cancer, Uncategorized

 

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The Rebellious Boob Chronicles: When God Makes Your Coffee…

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Do you ever have this sneaking suspicion that something just isn’t right? You hear your intuition talking to you and you try your best to acknowledge it and ignore it all at the same time? Last spring through the fall (2018), there were moments I just did not feel like myself. Times, especially on the trail, that I would feel fatigued more so than I thought I should with no reasonable explanation. With having several diabetics in my family, I too have struggled some with regulating my sugar over the past few years so I would just always reason it out as being that, and perhaps some moments that was truly what was going on. However, there was this deeper gnawing in my gut that would throw these ridiculous thoughts into my head. I would shake them off and think…what the heck Christy? I would pray, rebuke (yes, I was raised charismatic! Lol), and go about my business. Then, around July or August, I started noticing a lump in my right breast changing. In 2015 I had a mammogram come back questionable, went for a diagnostic mammogram and an ultrasound and thankfully the diagnosis was just density. It was a scary moment, scary enough to make me cautious and I kept my mammograms up from that point on, even when I didn’t have health insurance. (Kuddos to a grant at your local health department. Check it out!) Always, it showed up, always it came back as density. In November of 2018, I made yet another regular mammogram appointment, went, received the same diagnosis and was scheduled for yet another diagnostic mammogram and ultra sound for January 3, 2019. This time seemed a little different than the last, the concerns a little more pressing, more care taking during the examination and I somehow knew that a biopsy was on the menu. Now I am a faith filled woman who believes in praying about everything, I had already been talking to God about the possible outcomes and reasoning with him why having something wrong with me would not work at this stage in my life.  My biggest concern, my fear, my pleas…My children, Lord, please don’t make them walk this road again. My children lost their dad to colon cancer in 2011 and needless to say it has been a very tragic and painful road for them. Please Lord, not for my sake, but for theirs, let everything be okay.

I shared the news of the upcoming biopsy with a few close friends to have them pray for my outcome. One of my girlfriends, you know the kind that have been intertwined into your being and became an essential part of your life?  She agreed to go with me to the biopsy, just in case, for comfort and support. And thus it was scheduled, January 10, 2019. I got up that morning standing somewhere between confidence, faith and agitation. I really didn’t have time for all this. I opened my phone to Facebook and my memory from January 10, 2018 stared me in the face: “Dear Christy, when I choose not to move the mountain, then what?” Lamentations 3:21-25. (FYI: My Dear Christy series is a whole other blog!)  I felt like I had been hit with a ton of bricks. I had been fervently praying for God to move the mountain I anticipated in the distance, and it was at that moment I knew beyond a shadow of a doubt, inevitably, me and my children were going to be facing a mountain not of our choosing. Emotion consumed me and I let out a huge sigh. I admit I was a little pissed off at that fact that my children would again have to walk a difficult journey that they had no control over. I was fearful of what the news would do to their precious hearts. My mind full of anguish over the terror that would be piercing to their souls when I had to tell them the news that their mother had cancer. I’m a fairly persistent woman so again I pleaded with my Lord, please; do not make them walk this journey.  Please. Not this mountain, Lord. I said nothing to my children and settled within myself that I wouldn’t say anything until I had something in concrete to tell them.

Fast forward to January 18, sitting in the doctor’s office with my soul sister again by my side. The diagnosis: invasive ductal carcinoma in my right breast. Two places, Stage 1 and 2. I scheduled an appointment with the surgeon and left the office in a fog, trying to figure out how I could get through this diagnosis perhaps without even having to tell my children. I just knew when I went to the surgeon that she would tell me that I would need a simple surgery to remove the lumps and all would be well. ROFLOL right?  I‘m so ambitious.

On January 22, a normal Tuesday evening, I asked all my children to join me for dinner at our house as I had to share the news with them. The next year of our lives would involve months of chemotherapy, surgery, more protein chemotherapy, and reconstructive surgery.  My heart broke as I saw the look in their eyes and heard the gasps escape from deep within. They were devastated and they had every right to be. Why Lord? Not why me? Hundreds of women a day hear the same news, if not worse, but my question was, why them Lord? Why again?  What on earth do you have for them to do that requires all of this suffering and growth at such an early age?  I know this journey will be different from the last one, but why, Lord? My heartfelt prayer was simply God give them grace, peace and strength for this journey. Make your presence known to us Lord. We have to know that you are with us every step of this way Lord. We have to.

Over the next several days, we talked, we cried, we talked more, laughed a little, cried more and prayed much. As the moments passed, I sensed a peace that passes understanding envelope us all. Sunday evening rolled around before my first treatment and I was busy trying to get everything prepared for the next morning. Bag packed with goodies and things to occupy the time, clothes picked and laid out, snacks, water, and oh, before I lay down, let me get my coffee pot ready so that I can just hit the button in the morning when I am ready to brew. No need to turn on the timer, I will just have it ready and it will be one less thing I have to focus on. The clock flashing 12:00 am.  Prayers. Goodnight.

Morning rose and so did I, like a warrior, ready to face what was before me. I showered, dressed and prayed fervently again for God to make his presence known to us today in a mighty way. I was collecting my things and remembered my coffee, time to turn it on! I walked into the kitchen and to my surprise there in my coffee pot sat a freshly brewed pot of coffee. It was finishing up its last drip as I flipped on the light. I was a little puzzled as how this had happened. I distinctly remembered NOT turning on the timer to set it, so I looked again at the clock and it was flashing 12:00 am as it had been doing the night before. No one had been up in my house yet, no one had been stirring except for me and God.
God? Did you make my coffee for me?   Did you really turn my pot on for me and make my coffee?

The same God who spoke the worlds into existence, and separated the day from the night. The same God who holds the stars in their place and calls them all by name. The same God who formed the mountains and measured out the seas. The same God who stores the treasuries of the snow and releases them in due season. The same God who gave his son for a ransom so that I could know Him by name. That  very same God had showed up in my quaint little kitchen on a rainy Monday morning in February and turned my coffee pot on. True story! Yes, yes He did! The same God who had walked with us so far in this journey of life is the same God who was saying to me loud and clear, I am here, I am with you, and I am going to take care of you.

I know there are a lot of unknowns that I will be facing over the next year. Lots of ups, downs, surprises, irritations. After making it through my first post-chemo week I have made new discoveries about my body that wish to never have became acquainted with.  I have been dished a rude awakening to just how unbiased chemotherapy is, it doesn’t matter how tough you are, chemo doesn’t care! Did I mention I am a little pissed off about the whole thing and what subjecting myself to chemical warfare is going to do to this rock star body I have worked hard to have? (insert a little laughter – a merry heart does good like a medicine). To even say that I am excited about this journey in the physical sense is absurd. No, I am far from excited. Yet in a few short hours, days and weeks, I have been showered with so many blessings, covered in abundant fervent prayers, received overwhelming support and love and have made connections with women that will be forever set in stone. Do I have a feeling this is going to be one of the worst times of my life? Heck yes!  However I face it head on, with courage and know that it will also be a season coupled with one of the best times of my life.  When the God of all creation cares enough about me and my children to show up and make my coffee for me, what other grand things is he going to do through this journey? This is my story, stay tuned….

 
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Posted by on February 17, 2019 in breast cancer, Uncategorized

 

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