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Oh, Sweet Valleys Below…

Atop Mcaffee Knob along the Appalachian Trail, Roanoke VA

Oh sweet valleys below…

So precious to me

Who would I be

Had you not shaped me?

I give thanks

For all that I am

And all that I’m not

For every loss

For every gain

Through the laughter

Through the pain

Warmed with the sunshine

Drenched with the rain

With every step

I have been changed.

Oh sweet valleys below

On this mountain I wonder

I gaze and I ponder

Who would I be

Had you not broke me?

Sometimes choked me

Left me gasping for air

Oh deep despair!

You Defined. Refined. Sublimed.

Oh sweet valleys below

You are my treasure

My measure, my pleasure

Without you I would never be

All of me

Risen. Redeemed. And Free.

Oh sweet valleys below…

 
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Posted by on April 19, 2022 in Uncategorized

 

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The Rebellious Boob Chronicles – One with the River

Recently I had the opportunity to attend a cancer recovery retreat in the Lake Logan North Carolina area hosted by Casting Carolinas. Casting Carolinas is a non-profit organization that offers one-day and three-day retreats for women surviving all types of cancers. They use their own unique F.L.O.W. program that combines fly fishing instruction with medical education and mindfulness, teaching survivors skills to help them deal more effectively with the emotional effects of cancer and survivorship. 

To say that I was extremely excited for the retreat is a gross understatement. I had originally been chosen to attend in October 2020, but due to unforeseen circumstances of a pandemic, the retreat had to be cancelled indefinitely. Sigh. I would remain on the waiting list to be contacted when things opened back up. When the email came through in June stating they were opening up registration again for an October 2021 retreat, I was so thrilled that I set an alarm to remind myself to sign up first thing! The anticipation over the next few months stirred in my soul as I felt this time away was going to bring many blessings. I am a nurturer at heart and I spend the majority of my time, at work and at home, taking care of others. This 3-day weekend, however, was going to be a time of focusing on me and for once in my life I didn’t feel selfish about that.

The day had finally arrived, the weather forecast for the weekend looked fabulous, I was packed and headed out. I had my windows down, some praise music on, the leaves were already wearing autumn attire and the two hour drive quickly passed. I caught myself smiling from ear to ear as I drove up the gravel road to the retreat center, pulled into a space, took a deep breath, and stepped out of the car to spend 3 days with complete strangers whom I shared a common bond with – survivorship. All of our lives had been uprooted by a cancer diagnosis, some more than once, yet we were all here, ready to embrace what was in store for us.

Laughter and peace permeated the atmosphere as I stepped up on the porch of the cabin. I was greeted by several volunteers that made me feel welcomed immediately and directed me inside to the registration table. All the ladies that hosted and served at the retreat were so full of life, joy and friendliness and made you feel at home immediately.  Once I checked in I was to come back outside and be fitted for my river waders and boots for the fishing trip on Sunday! Wait. A River. Moving water. Insert anxiety. Was I ready for this part?

My mind wandered back many years, to a moment in time that had forever seared itself into my brain. I was 6 or 7, at the lake with my family and my father was trying to teach me to swim. He stood at a distance, chest deep in water, swearing to me that it wasn’t over my head, and promising that if I started to go under, he would save me. Little did I know he was standing on a stump that lifted him up a good 3 feet.  I attempted to swim, face down in the water, arms stroking back and forth. I was making some progress but suddenly, I began to sink. The water overtook me, I was thrashing left and right, eyes wide open, surrounded by the murky water and bubbles created by the oxygen that was leaving my lungs. My feet desperately searched for the bottom and it was nowhere to be found. I screamed but no sound came out, only gulps of water rushing into my mouth. Where was my father? I needed him to save me! Whether this lasted 5 seconds or 5000 years, for me it felt like an eternity and  I just knew at that moment I was drowning. Finally, a hand reached down and pulled me out of what I thought was a near death experience, and as soon as my feet could touch ground, I ran out of the water, coughing, spewing out water, and terrified. I sat there on the shore crying, wanting a hug or reassurance that I was okay, yet what I got was belittling laughter. I was a worthless crybaby, a chicken, a coward, a sissy. My dad demanded that I get back in the water but all I wanted was to run away in fear and I didn’t care what kind of punishment I would get for refusing his demands. A whipping would be better than dying, right?

From that moment water became my enemy and at the age of 51, I still cannot swim. I can climb a 500-foot mountain, stand on death defying cliff edges, leap a tall building in a single bound – okay maybe not that extreme – but I can handle getting my feet wet in stream crossings. However, if the adventure involves any part of my body above my knees being immersed in water, you can guarantee that anxiety rushes in. There I stood on the front porch of the cabin, getting fit for boots and river waders and in two days, I would be standing in a mighty rushing river holding a fly-fishing rod. Oh Lord, what had I gotten myself in to?

The next couple of days were amazing! The heart of the retreat is a mindfulness program developed by the hosts of Casting Carolinas, called F.L.O.W. It focuses on taking a deep breath, calming your spirit and being aware of what is going on with your thoughts, emotions and reactions. We had several group sessions where we all came together and spent time connecting with ourselves and each other, learning, and growing. We shared lots of laughter, life experiences, and shed heartfelt tears. I felt incredibly honored to be in the midst of so many strong and powerful women. We also spent time learning about fly fishing! We learned about the river and the different aspects of it. What kind of insects the fish eat. How to put a fly-fishing rod and reel together, tie on the flies, and how to cast. We even got to make our own flies! Saturday evening, we were entertained with a time of live music, dancing and singing, oh and not to mention that we ate so much delicious food I thought I would bust.  My heart was overflowing with joy and gratefulness as I laid my head down on the pillow Saturday night, closing my eyes in anticipation of Sunday morning’s river adventure. All that we had learned about fly fishing would be put into action as each woman would have their own guide and get to spend almost four hours on the river fishing.

The sun rose quickly the next morning, and decked out in our boots and waders, we all gathered at the cabin for a closing ceremony. Whew, what an emotional hour! 🙂  We then made our way to the dining hall for breakfast and to meet our guides. My guide for the day would be Rick, an experienced fisherman who cut his teeth fishing in the Gunnison Valley of Colorado. We enjoyed small talk over bacon and eggs, got group pictures and then headed out to the Pigeon River to hopefully catch some fish! As we made our way down to the river and stepped in, I was entranced by the melody of the moving water. Rick took some time to educate me on a few things, observe my newly learned casting skills, find a nice spot to steady ourselves and then it was time to fish. I admit it was awkward at first feeling the difference between fishing with a spin cast and spinning reel versus the fly rod. I was used to having weights on my line and the fly-fishing line seemed weightless. After a bit of practice, I got the hang of it and I was casting, getting bites, losing fish, and yes, I finally caught some.

My catches included a brook trout, a rainbow trout and a brown trout, which earned me the badge of what fishermen call a “grand slam,” catching one of each type of trout.  Go Christy! It was so fun being played by the fish. The water was crystal clear, you could see them just hanging out underwater and watching as my fly would float downstream right in front of them. Then those little buggers would jump right out of the water in front of you just to show you who was the real boss! As we were walking upstream to fish in another spot, I noticed a brook trout hanging out in a little pocket of water to the left of the river. I said to my guide, “hey, there’s a fish right here!” He said, “see if you can catch it?” I said, “with my bare hands?” Yes! So, I took a deep breath, raised my hands in the air and breathed out, “I am one with the river.” I was being silly, but hey it worked! I knelt down, slowly put my hands in the water and very gently eased them under the belly of the fish and bingo! I raised him right up out of the water! My guide let out a huge belly laugh and I was proud to be his first student to catch a trout with their bare hands!

As fun as it was catching the fish, my favorite part of the day was reading the river. I loved observing how the different sections flowed at different speeds. I learned what lanes were and began to identify riffles, eddies and pockets. I discovered that you begin fishing the river in front of you and slowly progress across the stream so that you don’t spook the fish. At one point I even told my guide that he was more than welcome to fish while I just stood in the river being mesmerized. For the professional record…he did not fish! :). At one point I was standing in moving water that was almost chest deep and I could feel the weight of the current against me. Wait, I was standing in water ALMOST CHEST DEEP!  I closed my eyes, took a deep breath and realized that for the first time in my life I was surrounded by water and my mind was not consumed with anxiety.  In fact, all morning I had not given one thought to anything other than the delight I was feeling as the river had wooed me like a new suitor and captured my undivided attention. 

Twelve thirty rolled around quickly and it was time to head back to the dining hall for lunch, our graduation ceremony, to tell our fishing stories, say our heartfelt goodbyes and head back home. Some folks had caught tons of fish, others a few, one had caught waders full of water as she took a tumble, and me, yep I told the story of how I caught that brook trout with my bare hands! The weekend had written so many great stories yet I knew that the greatest story of all was that, on this wonderful Sunday morning in October, I was no longer a terrified little girl, a crybaby, worthless and a coward. I was also a strong, powerful woman, and in those few passing hours I had made a new friend and the river and I had truly become one.

 
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Posted by on October 12, 2021 in breast cancer, Uncategorized

 

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The Christmas Doll

It was a rare occasion to find myself at home on a Friday evening. Usually I was either already on the road to Western North Carolina or gearing up to get on my way for an adventure-filled weekend. However, work schedule changes for my significant other created a shift in my normal plans, so here I was, sitting at home in a quiet house with time on my hands. I decided I would take advantage of my time and tackle some cleaning and household projects that had been on the back burner. I moved furniture, swept down dust bunnies, moved some pictures around on my wall and cleaned out a cabinet. Next thing I knew, I found myself up in my attic going through boxes and totes, not really looking for anything in particular, just sorting, organizing and purging items that no longer added any rhyme to my reason. I opened one tote that had several Boyd’s Bears in it I was saving for my grand-daughter, and there in the bottom of the tote, I found her – my Christmas doll. I picked her up, looked into her dreamy eyes, and for just a few moments, as a rush of emotions consumed me, I traveled back in time almost 40 years.

Growing up in our house was not always the most pleasant of occasions. My father was a troubled man who had come from a very poor and violent upbringing. In appearance, he was strong in stature, handsome, and if you met him on a normal day, you would say he was quite likable and funny. When I see pictures of him as a young man, dressed in his military attire, I can see why my momma fell in love with him. What a looker! However, my father was also an abusive alcoholic and when he drank, the portals of hell could not compare to the evil rage that came out of him. The demons he wrestled with wreaked havoc on any one in his path, and most of the time that was my momma and us children.

I am the third child of four children, and other than the fact that I look more like my momma than the rest of my siblings, I was just like any other ordinary child trying to grow up in a hostile world. In his drunken rages, my father made no bones about the feelings he had towards me. He despised me, detested me, abhorred me, loathed me – heck, he downright hated my stinking guts! I endured many beatings for simple things like looking at him the wrong way or laughing too much. I still recall the piercing sting of the steel rings of his thick white belt all over my back, sides, stomach and legs as he beat me for laughing at my sister while she was in the shower.  I was 5 years old. The physical beatings were painful, yet the things I recall that hurt the most were the words he would spew out of his cigarette and liquor ridden breath. I heard often how I was such an ugly child, so stupid, nothing but a cry baby and if I heard it once I heard it a thousand times how he wished I wasn’t his and how he didn’t even want me to call myself by his last name. He always called me by nicknames, which to him were amusing, but to me they were degrading and made me feel less than human. I was 33 years old before I ever heard my dad say ‘Christy’ and it shocked me so much that it took me a minute or two to respond to him.  As a young child, I did not have the ability to process that these things he would say weren’t true, I thought a father’s words was the gospel!  Nor did I have the wisdom I do as an adult to understand that these vicious demons belonged to him and had nothing to do with any shortcomings on my part. The aftermath of his destruction left me wounded, bleeding, literally and figuratively, broken, fearful and confused. I had no identity, no value in myself, I just knew that I was disgusting, unwanted, worthless and unlovable.

Needless to say, Christmases in our house were not the joyous occasion they were intended to be. I honestly only remember just 3 holidays that were significant for the first 13 years of my life. One was when I was in 5th grade and someone from the Salvation Army Angel Tree Program came to our house and met with my mother to get a wish-list,   clothes and shoe sizes for all of us children. I was ever so proud to wear a brand new outfit on our first day back to school from holiday break. I felt like a runway model as I sported those baby blue corduroy pants and a blue and brown plaid button up shirt. When my momma was finally able to break free from my father, get a restraining order and file for divorce, she was able to go to work at a local department store. That year we all had a brand new pair of house shoes under the Christmas tree! The third occasion I remember was the following year when we were picked to have a Christmas shopping spree at the department store where my momma worked and that is when I found her, the Christmas doll. The moment I laid eyes on this doll I knew that I had to have her. She was the most beautiful doll I had ever seen and she looked like someone straight off of my favorite TV show, Little House on the Prairie. I coveted Laura Ingalls Wilder, her simple life with a daddy who loved her and her family ferociously and worked hard to take care of and provide for them. There was a deep longing in my soul for this doll, and I chose her as my Christmas gift.

Fast forward almost 40 years, to a grown woman, sitting on the living room floor, holding this doll that I had kept for so many years. Through nine moves, two states, broken relationships, a wonderful marriage, a hateful divorce, unspeakable heartaches, terrible loss, shattered dreams and life-threatening disease. Through years of healing, helluva hours of counseling, renewed hopes, incredible transformations, perseverance, and self-discoveries. Through hard times, good times, joy, laughter and tears. Time and again  I had set her out on beds, put her back in boxes, set her back out in chairs as decor, only to put her back in boxes to safely store away and move again.

 When I saw her so many years ago sitting on the shelf in that old department store,  I had no understanding of the depth of why I not just wanted her, but needed her so badly or why I would keep her for so many years. Yet finally, on a rare friday evening that I found myself home alone, the answer flooded my soul like a dam break. This Christmas doll – she was beautiful, she was valued, she was wanted and she was loved. She was everything that I had yearned to be as a child and everything that I had fought to become as a woman.  I was her and she was me. 

Alone on the floor in that quiet house, I rejoiced because I am no longer that lost, broken child searching for love, significance, worth and acceptance. As an adult woman, I know that my wounds have healed, my scars, although still a part of me, have faded and I am fully aware that sometimes in life we are the victim of someone else’s battle. I can honestly say that I do not hate my father, I feel he has hated himself enough through the years for the mistakes he made and the devastation my tender heart suffered at his hands. I pray he has found the healing, peace and forgiveness in his own heart that I have embraced for myself and that we all desperately need. I breathed a slow, heavy sigh as I placed the doll back into the safety of her tote and laid my other keepsakes around her. One day, when I am long gone from this world, my children may find her and wonder why their momma kept such a simple, old doll stored up as a treasure. 

 
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Posted by on July 14, 2021 in Uncategorized

 

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The Rebellious Boob Chronicles – Life After Active Treatment: The Quest for Normalcy

10 months ago I finished up active treatment for Breast Cancer. 17 months of my life spent dedicated to eradicating the terrorist that had invaded my body and threatened my well-being.

18 weeks of chemotherapy involving 2 chemotherapy drugs and 2 immunotherapy drugs.
17 immunotherapy infusions.
5 surgeries including a double mastectomy and reconstruction.
25 radiation treatments.
Completed. Done. Finished. Over with. Sigh. Hallelujah.

Being the hope filled, positive-attitude-kind-of-girl that I am, I had noble aspirations that finally life could go back to normal after everything was said and done, right? Yeah, I know, I love the way I crack my own self up sometimes but a girl can dream, right?!?

According to Webster’s dictionary normal is “the usual, average, or typical state or condition.” “conforming to a standard; usual, typical, or expected.” I am sure that at some point in my educational plight ‘normal’ had been a spelling word that I had to look up the definition for. I was in fact the spelling bee champion for many years throughout my elementary and junior high years (hey, we all have to be good at something! I just so happened to thrive at memorization!) and I have always had a love for words, their meanings and the way you can scramble them together and write a beautiful story. Anyways…

I was ready to be ‘normal’ again. My healthy, active, adventurous happy world had been rocked by the diagnosis of breast cancer. I had sat week after week enduring treatments that, although the ultimate goal was healing, came in like a wrecking ball and transformed my fit, strong body into a caricature of weakness. I worked hard during the off-weeks of my treatments to keep myself built up, knowing that the next round would inevitably wreak a little more damage, bring a little more fatigue, a little more muscle atrophy, and a little more transformation to the woman I saw looking back at me in the mirror. I don’t despise the treatments that were successful and have given me more years to live my life, but I won’t pretend that I enjoyed those suckers one hairy bit! They were a dastardly yet necessary task and I would be just fine to never, ever, ever have to endure them again! I was ready to begin the process of rebuilding without the task of being tore down again.

I was ready to be normal again. To not have to undress in an open room and lay bare chested on a table while nurses chatted casually as if I wasn’t present. At times I didn’t even feel human as they lined up the fire-breathing dragon machine to zap any cancer cells that might be lingering in the shadows of my chest area formally known as my breasts but now a cavity with muscles separated from the chest wall and stuffed with concrete filled expanders.

I was ready to be normal again. To get up, get dressed, put on my face and not have to worry that throughout my day my painted-on eyebrows would get rubbed off and I would be walking around looking like Pinky after his horrifying eye-brow shaving bathroom scene. (referencing Pink Floyd’s ‘live action/adult animated surrealism musical The Wall Movie’ that was popular in the 80’s. The majority of you reading this blog may have no clue what I am talking about, and if you don’t, it’s okay, don’t watch it.  You will forever be traumatized any time you hear any of the songs from the soundtrack. Just googling the album cover is enough to scar you for life!)  

After 17 months of fighting a disease that was sent to take me out, I was ready to be normal again.

9 months later, I can say to you that normal is:

A setting on your dryer.
A temperature of 98.6.
An average statistic.
A blood pressure of 120/80.
A man not asking for directions.

However, normal has nothing to do with how you feel after active treatments are over.

Don’t get me wrong, physically, for the most part, I feel great!

My hair, my eyebrows, and my eyelashes have all grown back and I look pretty much like myself again (except for the natural hair color. No more Clairol! 😊)

On most days, my energy level is fantastic. I can now work again until I am done – not until my body says whoa…you have used up all of your energy cells today and I am shutting down…at 11 am.

I am starting to rebuild muscle tone – it’s a slow process but hey, it’s a process!

I can wear tank tops now without being self-conscious of a port bulging out of my chest like a third eye.

I am no longer referred to as a cancer patient – I am now a cancer survivor! whoop whoop!

There are SO many positives and for each and every one I am thankful.

But am I normal? Of course, some would debate that I was never normal to start with, right but zip it!

My point is I have discovered that going through cancer changes you. There is no such thing as going back to normal. It not only alters your physical body – noobies and nice new boobies are not the same! Trust me! My whole entire upper body has been restructured; I have shoulder aches, I have noobie muscle spasms (OUCH!), I am constantly aware of the discomforting tightness on my right side, blah blah blah – For more information you may read a previous blog about the new girls. 😉

There are some days, for absolutely no reason at all, that I am unusually tired and I have to have a zero evening.

My hair that was so nice and thick growing back is now thinning due to the medication I have to take daily.

I am depleted of estrogen as a preventative to keep new cancer cells from growing back. My body went from pre-menopause to post menopause, which is normally a several year transformation, in 8 seconds.

In spite of all of the physical changes I have experienced, I can honestly say that the thing I have found most challenging with surviving cancer is the way that it affects your mind set. Yes, I feel great, I take care of myself, I eat healthy, I exercise on the daily. I feed my body, soul, and mind daily with positive energy. I am religious with my check-up appointments and I even google my bloodwork to make sure things are, yeah you know, NORMAL! UGH!

However, any woman (or man!) who has had cancer knows that there is a constant nagging forethought of reoccurrence. Any odd feeling. Any abnormal pain. Any unexplained fatigue. Time for a check-up? Count on some anxiety. Time for yearly scans? They call that nervousness ‘scan-xiety.’ Even on the best of days, the thought of reoccurrence can creep up like an ex-boyfriend showing up at the same restaurant.  The timetable of your life is now forever associated with and referenced to “before cancer” and “after cancer.” Will this course of thinking change with time, perhaps, maybe, hopefully, please Lord!

So, is life after active treatment perfect? Nah? Am I back to normal, double-nah. It is a futile pursuit and I have given up the ridiculous notion that there is such a thing as me and normal in the same sentence. Nevertheless, I am certain of one thing as sure as my name is Christy. I endeavor to enjoy every single day of life after active treatment that I am blessed with and to live to the absolute fullest. I also know undoubtedly that I am much better now than I was when I began this journey many months ago, and for this I am forever thankful.

 
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Posted by on April 1, 2021 in breast cancer, Uncategorized

 

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The Rebellious Boob Chronicles: I Wish…I know…

Some mornings when I get out of bed and my feet first hit the floor, I wish I never knew what it was like to have cancer.
I steady myself as I feel the fiery sensations  on the soles of my feet
I slowly straighten up
I hear each joint whisper a sigh of discomfort
and I whisper back, I know, I’m sorry you ache
But we can do this!
I began to walk and I know that this day is a new day
With new mercies, sufficient grace and strength to make it through.

I know that my burning feet will carry me everywhere that I need and want to go
and on some days they will hike miles, scramble through creeks and over rocks
bushwhack through briars and thick rhododendron
and climb glorious mountains.

I know that my aching joints will sit down, rise up, make coffee, embrace my babies and grand babies, throw dog toys, cook dinner, do the laundry, take out the trash, do yoga, vacuum my house, mop my floors, mow my yard, drive my car and when the day is said and done, we will lay down together and silently weep accomplished tears.

Some days I look in the mirror and I wish that my body wasn’t altered, scarred, weak, different.
I miss my strength, my form, my endurance,
The definition in my arms and back from countless hours of climbing.
The firmness in my thighs from relentless, exhilarating adventures over the hills and through the valleys.
I gaze at the swelled areas of my chest,
I long for the day that I can stand in front of the mirror and look and feel like a woman again instead of a cancer patient.

Then I take a moment and a gaze a little deeper…
I run my fingers through my silvered hair,
I gently trace the scars where my breasts use to be
And I know that my body has been through hell and back
Fighting like a warrior
Enduring each poke, prod and knife against its delicate skin.
It armored up through chemical warfare, standing bold and courageous all the while suffering from the friendly fire coursing through its veins
destroying the terrorist that was attacking us.
I know that we are working in harmony for healing and victory,
We are stronger because of our battle
And I know deep inside that I am more of a woman than I have ever been.

Some days I struggle for the right words to say when my granddaughter asks why I shaved my head?
Or why can’t I jump on the trampoline with her?
Or what is cancer momsy?
My heart aches and I wish I never had to explain to her, or any of my babies or grandbabies, about this hateful disease.
I wish that they would had never had to see me tired, weak, sickly, bald.
I wish they would never have to experience hurt, fear, shame, or injustice in this broken world.

I pray and I know the right words will come.
I also know that actions speak louder than words!
Silently they are observing what grace and grit and determination look like.
Soon enough they will see with their own little perfect eyes and pure hearts that life isn’t always kind,
But we can be.
They will know that God is always on our side.
He is faithful and just and
He will never leave us or forsake us.
They will know what a firm foundation of faith looks like in certainty and uncertainty,
And they will know that  with the love, support and encouragement of family and friends
A person can make it through even the most difficult of times,
And even broken things have beauty to behold.

Some days I wish life was different
But I know that no matter the situation, the circumstance, the season or the struggle,
Life is a gift to be treasured
To be lived to the absolute fullest
Today and everyday.

March 27, 2020
Ramblings of a quarantined survivor, thriver and lover of life
#coronapandemic2020


 
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Posted by on March 27, 2020 in breast cancer

 

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The Rebellious Boob Chronicles: A Year Ago Today…

twin towers

(I dedicate this blog to my dear friend and soul sister Brooke West who took me to all of my doctor visits, who sat with me through every minute of chemotherapy, who endured me on steroids…whoa! who laughed, cried and prayed with me, and who sent me the most powerful text message early one late December morning that inspired these words.)

They say time flies when you are having fun. I say time has a way of creeping by and flying by all at the same time whether you are having fun or not. It is hard to believe that just one year ago today I was getting ready to embark on the most challenging personal journey I have ever faced in my life. I have definitely been through some rough times in my 49 years, heck my early childhood was enough to make anyone tremble a little (but that is another blog for another time). I have lost family, friends, a marriage, a spouse. I have had my heart broke by people who were supposed to be my friend. My family has experienced the tragedy of senseless violence, we have suffered the consequences of not-always-the-smartest choices (a nice way of saying I have done some stupid stuff in my life!), and we have had the proverbial rug pulled out from under us on many occasions. I could go on and on, but I think you catch my drift that life hasn’t always been a piece of cake. The hard times have shaped me and my faith has produced a stubborn resilience that refuses to let the hardships get the best of me! However, in January of 2019, life was getting ready to throw me a hefty kick to the gut, on the most personal level, which would require me to dig deep, trust wholeheartedly in my faith and endure with the strongest determination I could muster up.

On November 21st, 2018 I went for my yearly mammogram. After receiving a bad scare in 2015 and having to go have a diagnostic mammogram and ultra sound to determine density in my right breast, I had kept up my mammograms on a regular basis regardless of the fact that I didn’t have health insurance for years (kudos to the local health department for a grant that covered mammograms for uninsured women). On November 28th I went for a complete physical with my primary care physician. I hadn’t had one of those in years and felt it was a smart move since I now had health insurance that covered such things, and I hadn’t been feeling quite like myself here and there. The good news is that my physical results were fabulous! All of my blood work came back perfect and my doctor said I was one of the healthiest women she knew. The bad news is my mammogram came back showing some questionable areas in my right breast, and once again, a diagnostic mammogram and ultra sound was ordered. I would like to say that I was as calm as a cucumber, but I won’t even try to downplay the fear that ravishes a woman’s heart when she is told further tests need to be done. Not to mention that over the course of 2018 I had noticed a change in the pea size mass that was diagnosed as density in 2015. It was now about the size of a nickel but according to google it was nothing, (seriously, of course I googled it!!) but deep down inside, I was scared. On January 3rd 2019, I went in for my testing. It wasn’t anything I was unfamiliar with, but this time the atmosphere seemed a little more intense. The mammographer appeared a little more serious and the ultrasound tech took an extensive amount of time checking out my right side and under my right arm. Finally, she called in the radiologist so that she could sit down with me face to face, eye level to eye level, and tell me ever so gently that it was expedient that I go for a biopsy.

I left the office feeling overwhelmed and as I drove back to work, I cried a little and prayed a lot. My thoughts rushed to my children and I had no I idea how I would tell them that their mother may have breast cancer. I spent the next week praying profusely and diplomatically telling God why I DID NOT need to walk through breast cancer at this time in my life. No just NO! Of course I didn’t want to have to fight the battle, but my reasons weren’t selfish ones, first and foremost I did not want my children to have to suffer through another parent having cancer. Please Lord, not at this time in our lives. Give us a little more time to grow, to heal, to enjoy life. I am strong in my faith and firmly believe that the God I serve can work miracles and remove anything out of my body that He chooses. Yes Lord, work a miracle on my behalf, after all my God moves mountains, right?!?

A year ago today, on January 10th, 2019, I was dreadfully waiting for the sun to rise as I rose out of bed early to get ready to go to my scheduled biopsy. One of my most dear friends and soul sister’s was taking me so that I didn’t have to go alone. I made my coffee, read my devotion, prayed and again recited to God at what a testimony it would be and how I would so praise Him if He would just remove these freaking lumps in my breast (yep, ultra sound showed two!).  I opened my Facebook and the first thing I saw was a memory from my ‘Dear Christy from God’ letters on January 10, 2018 (exactly one year prior) that said:

“Dear Christy, when I choose not to move the mountain, then what?” ~God~.

I knew in that moment what the outcome of the biopsy would be before they ever pierced my skin. I knew in that moment that my life and my children’s lives were getting ready to change drastically. I honestly didn’t know what all it would involve, but I knew from this moment on that my life would be on a different time table – you know, like how we measure time as BC (before Christ) and AD (anno domini – the year of our Lord) – now for me it would be “before I got breast cancer” and “after I survived breast cancer.” I sighed deeply and read the memory again:

Dear Christy, when I choose not to move the mountain, then what? ~God~.
Dear God, well, I guess we climb the dang mountain, that’s what. ~Christy~

And that is exactly what we did.

It took eight viciously long days for the doctor to call and ask me to come in for my results. Tom Petty nailed it on the head when he said “the waiting is the hardest part!” My dear friend and soul sister went with me to hear the results and we all had to chuckle a little as my doctor recited again that I was one of the healthiest women she knew…but…the biopsy showed that I had breast cancer.  My first reaction was “well hell” and after listening to what the next few weeks of my life would be like with all the doctor visits they would line up for me, Brooke and I both agreed on one thing; My God, the one in whom I believe in and love wholeheartedly, the one who loves me more than I can imagine, the one who flung the starts into place and measured the depths of the seas in the palm of his hand, the One who is good all the time, He was not at all surprised by this diagnosis. The bargaining was over, the course had been set and if He wasn’t going to move the mountain, then in no uncertain terms He was going to have to show up and help me climb it. On this side of the battle I can say that not only did God show up, but He showed out!

I have spent the past year of my life climbing this mountain called breast cancer. I have gone through two port surgeries, 5 months of chemotherapy, a double mastectomy, 25 radiation treatments, and reconstructive surgery. I lost my hair, my dignity, my hot, muscular beast of a body I had worked so hard for (okay, maybe I wasn’t so hot to start with but it’s my story and I’m sticking to it! J). My battle isn’t quite over yet as I am still doing immunotherapy infusions every three weeks. I am getting ready to take a preventative pill for a year and then another preventative pill for five years. Hopefully I will only have one more surgery left to complete reconstruction. All in all, it is safe to say that it has been a wing-dinger of a year! I have felt strong and I have felt weak. I have felt empowered and I have felt helpless. I have been brave and I have been scared. I have been challenged physically, mentally and emotionally. I can say that being on this side of the battle feels much better than where I was one year ago and, despite all of the losses and struggles,  I have experienced some pretty awesome things through all of the madness. I have been surrounded by the most wonderful support system of family and friends, saturated in prayers and positive thoughts by a countless number of people and received more acts of kindness than I deserve. I have met some of the most precious folks along the way who had fought this same battle, strangers who became friends almost instantly because of the special bond we share. In the best of times and in the worst of times, I know without a doubt, that I have not been alone in this struggle for one single minute.

By the grace of my Almighty God, I was not only able to continue to work full time, I was also able to do my job with a passionate fervor and reach and exceed the goals that were set before me. I have traveled to more states this year than I have in all my life and I have watched the sun rise and set on the east coast and the west coast. I was able to experience a sweet beach vacation and a grandiose out west adventure, celebrating my 50th birthday watching the sun come up over the Mesa Arch in Canyonlands, Utah. In the midst of fighting cancer, I logged 3,284,177 steps and I was on the trail 83 days, only missing  a handful of adventures due to treatments and side effects. The most difficult year of my life has also been the most glorious of adventures! And I give all praise, honor and glory to the God in whom I gave my heart to so many years ago. His joy IS my strength!

Some would argue that if He was such a good God, why didn’t He move the mountain like I had begged him too? Oh my, as I type this I shudder at the things I would have missed if He would have done things my way. Am I saying that I am thankful for cancer? NEGATIVE GHOSTRIDER! However,  had I not walked this journey, I would have missed the recognition of His mighty hand weaving the strands of my life and guiding my every step. In 2012 God sparked a desire in me for the outdoors, and after my first hike in June 2013, a passion for hiking and adventure was birthed in my soul. I can name 3 things that tried to divert my passion through the years, but God in His goodness would always just redirect my steps and lead me to another place til eventually I found my Tribe. From 2016 through 2018 I spent weekend after weekend on the trail and with each step God was with me, honing my heart for maximum strength, honing muscle and sinew to perfection, building up every aspect of my body, strengthening my mind. healing my soul, and preparing me for a battle that would inevitably attack it all. He knew that on January 18, 2019 when I received the news that I had breast cancer that I would need to be in the best physical, mental and spiritual shape that I had ever been in to endure and come out victorious. Insert that I worked for 13 years without health insurance, and in August 2018 I was hired at my new job that offers incredible benefits, my health insurance kicked in on October 1, just 3 short months before my diagnosis.

A year ago today breast cancer was my diagnosis but it was never my destiny! It is just a path to another purpose and I hold fast to the peace, joy and thanksgiving that fill my soul. Today, on January 10, 2020 I open my eyes to a new day, a new year, a new decade and I know beyond a shadow of a doubt that I am better, much better than I was…a year ago today.

 
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Posted by on January 10, 2020 in breast cancer

 

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The Rebellious Boob Chronicles: Radiation and Vacation

The Subway

A diagnosis of breast cancer is something that no woman ever wants to hear, however, on average, one woman out of 8 is diagnosed with breast cancer in the United States every two minutes. On January 18, 2019, I experienced those “two minutes” and my doctor informed me that I had invasive ductal carcinoma in my right breast. Suddenly I became the “one in eight.” The good news was there are 3.5 million breast cancer survivors in the United States, the cancer had been discovered in early stages and I was the healthiest I had ever been in my life, which gave me a running start at what my body was getting ready to endure for the next several months. My treatment plan included 6 rounds of chemotherapy, once every twenty days, and then surgery to remove the affected breast tissue. The bad news was…I had freaking breast cancer and I was getting ready to embark on the most challenging year of my life.

After my diagnosis, things moved quickly. I had my first MRI on January 24th, first Echocardiogram on February 1st, had my port put in on February 4th, and my first chemotherapy treatment was February 11th. For the next several months I had more doctor visits than any one human should have and my body experienced many hardships and changes. I had my last treatment on June 3rd (hallelujah!) and went to my follow up MRI on June 17th to assess how effective the treatments had been. On June 19th around 11:45 am, I received the call with the results, “No evidence of residual malignancy in posterosuperior and upper inner quadrant areas of the right breast or elsewhere.” The tumors were GONE!  The chemotherapy had worked! The prayers had worked! All the support and encouragement had worked! All the moments of fighting against the terrorist that had invaded my body had worked! And last but not at all the least, my God had worked on my behalf and we had won! This stage of my battle was over and my next stage would be surgery scheduled for July 8th, 2019.

After careful consideration and consultation with my oncologist and surgeon, I chose to have a double mastectomy instead of just having the right rebellious boob removed. No cancer had been present in my left breast, yet I wasn’t willing to take the chance in having to fight this battle again if ole lefty decided to rebel against me in the future. Plus, the aging process is a reality in all of our lives and what woman really wants one boob that says “hello there!” and one that is saying “see ya later alligator” as she ages?? So, a double mastectomy with complete reconstruction beginning during the same process was scheduled. I am happy to say that surgery was a success and healing came swiftly. Perhaps it was the resilience that my body had already proven time and time again; the many prayers; my stubbornness; or all of the hiking I was able to enjoy while on medical leave. I was back on the trail 12 days after surgery and enjoyed 7 trail days, a beach trip between July 20th and August 4th and I was able to return to work August 5th.  My conclusion is that it was a combination of all the above! My surgeon had said that I could return to my normal activities after about a month so within one month and two days after surgery, I was back on the rock, climbing carefully, but nevertheless climbing! We even climbed one route completely blindfolded! Booyah!

Needless to say, despite all the hardships this year had brought so far, I was living and loving life! My follow up consultation with my surgeon brought unexpected news. She only had to remove 3 lymph nodes, which came back crystal clear, however one of the cancerous tumors had rested so close to my skin margin, and because she didn’t have a whole lot extra to work with (her kind words referring to my size B!) she recommended radiation to make sure there was nothing microscopic lingering around the tumor area. I would probably be okay without the radiation she said, but if I chose to have the radiation, she was confident that there would be no cancer left behind. So of course I chose to proceed with a radiation consultation and the next step in my journey would be 25 treatments, one a day for 5 weeks. We opted to allow the plastic surgeon to complete his process of stretching my muscle cavity to make pockets for my new implants before we started the treatments and this put us on a close time table. I had told my doctor during my consultation that I had to be done by October 17th because I flew out on October 18th to Utah for a much awaited out-west adventure that had been in the makings for almost a year. They weren’t that happy about the time restraint, nevertheless 2 days after my consultation my first treatment was scheduled.

Radiation began on September 12th and I had 26 days to complete 25 treatments! The first treatment was somewhat overwhelming as you walk into this huge room, a nurse stands behind you holding a hand towel to cover you up as you undress, you lay down on a table and they wheel you under this huge concoction of a machine that lines you up and shoots a radioactive beam straight to the targeted spot. After I got over the reluctance of taking my top off and standing naked in front of strangers, bearing my scarred chest that looked like it had two cement filled softballs crammed in it, the process itself was painless, a little dehumanizing, but painless. Each treatment lasted less than 15 minutes to show up, undress, lie down, get zapped, get dressed and leave. I began to get some minor skin irritation after 18 treatments, but I only had 7 to go and then I would be done and my body could enjoy a much needed 10 day vacation while healing.

On Wednesday October 16th, I completed my 25th treatment. Needless to say I was elated as I walked into the office to see the doctor and say goodbye. Treatments had gone well with minimal side effects and it was time to heal. The doctor looked at my skin, frowned a little at the irritation and then informed me that radiation side effects were about 10 days behind and I could expect more irritation. I would have to watch carefully and treat my skin with a special salve 4 times a day to avoid cracking and possible infection. When I explained to him I was going on vacation and would be hiking and camping, he explained to me that there was no way I needed to carry a backpack for at least two weeks. Yeah right, bahahaha! Inside I was screaming…what the heck! Why do you always have to rain on my parade! I am going out west and I do not have time for irritation and infection. Insert some major eye rolling and heavy sighing as I left feeling my stubbornness rising up from the pit of my stomach and as rebellious as the boob that had gotten me to this point in the first place.

Friday came and we were on a plan to Salt Lake City Utah. To make a long story somewhat shorter, we enjoyed 10 days of the absolute best adventuring a girl could have. The scenery was overwhelmingly beautiful! Mountains bigger than life! Incredible monoliths that didn’t even look real! Rocks, canyons, rivers, waterfalls! We put 1700 miles on a 15 passenger van, and almost 140,000 steps on my Fitbit. We visited Bridal Veil Falls in Provo, Utah; camped in the desert of Moab; visited Arches National Park and  Canyonlands;  watched the sunrise over the Mesa Arch as we rang in my 50th birthday; visited Mule Canyon and the House of Fire; drove through Natural Bridges National Monument and down the Moki Dugway (whoa what an adventure!); went through Mexican Hat, Monument Valley and Navajo Nation; stayed the night in Page, Arizona and visited Horseshoe Bend; drove to Bryce Canyon for a night of camping and exploring; and ended our trip with 3 days and nights camping in Zion National Park right behind The Watchmen. We hiked the Subway (thank the Lord and Jeremy for getting the permits!) and Angels Landing and finished up our last night at the Canyon Overlook trail. WOW!!! Needless to say the entire trip was beyond amazing. I have inserted pictures for your viewing pleasure :).

I somewhat followed the doctors’ orders and spent time treating my irritated radiation skin in a cold van in the desert of Moab and in campgrounds at the National Parks. I only had to wear a pack twice the whole time we were there (thanks to my David for carrying everything!). By the time we returned home, my skin was almost all the way healed and ready for the consultation with my plastic surgeon on November 12th. The next stage of my journey would be scheduled for November 26th – surgery #2, the removal of the concrete softballs on my chest I had been carrying around since July and the insertion of new implants. Goodbye softballs, hello noobies!

This year of my life was almost over and the hardest parts of my journey were coming to an end. As I reflect back I must say it sure has been a challenge. There were days I felt like a victorious warrior and days it took all I had within me to fight through. Through it all I’ve lived, I’ve learned, I’ve loved, I’ve collected priceless memories and have been surrounded by the most precious people. I’ve discovered I am stronger than I thought I was but yet I don’t have to be strong all the time. There is a time to persevere and push on and a time for rest and healing. I’ve learned that no matter what life throws at you, with a little faith and a lot of support, you absolutely can make it through anything. It may not always be pretty and you may not always like it, but you will prevail. I’ve learned that during the struggles, if you keep on keeping on, the day WILL come that you are better than you were during those moments.

Next step – say hello to the ‘noobies!’

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Delicate Arch

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Landscape Arch

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Sunrise at Mesa Arch

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Canyonlands

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The House of Fire

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View from Moki Dugway

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Looking back up Moki Dugway. We drove down that!

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Sunset in Monument Valley

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Horseshoe Bend

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Bryce Canyon

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Bryce Canyon

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Welcome to Bryce Canyon

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Welcome to Zion National Park

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Front view from Campground

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The Watchman

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along the Subway hike

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Hiking up to Angels Landing

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Canyon Overlook

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Going up the Wiggles

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Our total number of steps…Whoa!

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The crew at The Subway

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The Subway

 
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Posted by on December 4, 2019 in breast cancer, Uncategorized

 

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The Rebellious Boob Chronicles – Chemotherapy Round 6 – Victory on the Horizon

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When I was diagnosed with Breast Cancer on January 18, 2019 life as I knew it suddenly changed. Beginning February 11th, I would spend the next 18 weeks in chemotherapy, a treatment every 21 days with a total of 6 treatments. I remember walking into the first treatment bold, extremely positive and a little anxious facing the unknown. After experiencing the first round of side effects I felt like it would take forever for this season of my life to pass. Fast forward to June 3, as I walked through the doors of the treatment center, I was more than ready to receive the last and final round of chemical warfare. I had made it! I had physically and mentally endured the side effects and changes that the chemicals had wrought on my body, mind and soul. I had lost much, gained much and learned much. I was ready.

From having endured the previous 5 treatments, I knew the side effects would come. Somehow though, knowing it was the last time I would have to deal with them made it less dreadful. The 6 or so hours of sitting  in the chair while chemicals were being pumped through my body was filled with conversation, laughter (I thought we may get called down at times!) and tears with my faithful friend, who had brought me to every single treatment.  A friendship that began 20 some years ago in the flower beds of a church yard; a friendship that was woven together by the very hand of God; a friendship that has endured loss of spouses, divorce, relocations, loss of contact at times and many broken hearts. A friendship that seems no matter where life always takes us, it always brings us back together to see each other through the moments of life’s devastation. Before my first treatment, another friend had shared with me that statistics showed that women who were facing cancer and had that ONE girl friend who went with them to every treatment had an extra 40% higher chance of healing and survival on top of the statistics of their treatment plan. My friend, my soul sister, my +40% had endured this season of my journey with me, she had diligently stood with me, fought with me, checked on me, cried with me, prayed with and for me and sacrificed her time for me.  If anything good came out of those times of being bound to a chair and hooked up to chemicals, it was the wonderful time we got to spend together and I am forever grateful for her!

After the treatment, I felt great! I went home and worked outside for a while, planted some pepper plants, went to work the next day and made it all day (heck yes!), went to the grocery store, cleaned out my refrigerator and cooked dinner (can anyone say hello to my ambitious self?!?). As the days passed, I kept anticipating the side effects hitting but I think my body was as darned excited as I was about this being the last time it had to go through this cycle. It had fought so hard over the last 18 weeks and been changed so much, yet this time, it rose up like a valiant warrior. My mouth did not get as sore even though my taste buds were in rebellion, the fatigue came but didn’t put me under as long (or maybe my ambition and stubbornness was is control). The bathroom episodes weren’t as tragic or frequent. The worst part I dealt with this time around was the skin under my fingernails dying. On most of my fingers my entire nail bed looked bruised and my nails became dry and brittle. Overall, the few weeks following the treatment were manageable and there was no dread of another one coming. We were able to get out and enjoy waterfalls, kayaking and climbing without me dying of exhaustion!

I had my follow-up MRI 14 days following the last treatment and on June 19 my doctor’s office called with the results – “No evidence of residual malignancy in posterosuperior and upper inner quadrant areas of the right breast or elsewhere.” The tumors were GONE!  The chemotherapy had worked! The prayers had worked! All the support and encouragement had worked! All the moments of fighting against this terrorist that had invaded my body had worked! And last but not at all the least, my God had worked on my behalf and we had won!

It took a few moments to collect myself after the phone call. To try to explain the emotions that were coursing through me is impossible. I had spent the past 5 months in the fight of my life, for my life and sweet victory was mine. I couldn’t wait to tell my children, my family, my David, my friends, my support system! We had won! The victory we had fought for, stood for, prayed for, hoped for and longed for was ours. My “someday” had come, this part of my journey was over and I knew at this moment that I was truly on my way to being better, much better than I had ever been.

I am not thankful for cancer. It is a horrid, hateful disease that has no prejudices or discrimination. It attacks with a vengeance and destruction is its priority. I never want to deal with it again in my life. I am thankful, however, for all of the blessings that I have experienced through this journey…

The incredible outpouring of love and support!

The prayers, positive words and encouragement.

The cards, phone calls, messages and visits.

The pampering visits and dinner dates with friends!

The unexpected care packages and gifts! and poems! and M&M’s! and hand made pottery! and prayer shawls! and blankets! and pictures!

The dinners made for my family! and the help cleaning my kitchen!

The strangers who have stopped whatever they were doing, wherever we were, and prayed for me.

The strangers who have asked me to pray for them!

The connections made and bonds formed with those who have walked this journey before me.

The time I have been able to spend with my children as they supported me through every moment of this journey! You ALL are the BEST! The strongest, most courageous and awesome 4 people that I know! I am blessed to be your mom and I love you BIG!! (Insert…I have the most amazing grand children this side of the universe ❤️)

The absolute best family and friends ever!

The sweetest, kindest, most generous and supportive boyfriend on the face of the planet. (Insert…he has some awesome shoulders to cry on and stunning blue eyes that slay me every time! 😊)

The un-explainable (spell check tells me that I may have made that word up!) God moments! God will make your coffee! He will shine his glory down from heaven and saturate YOU in the midst of 12000 acres! He will send the right word at the right time! He will schedule meetings just so you can spend time with a dear friend who lives 12 hours away!

So many blessings and I am beyond grateful for each and every one.

I am thankful this part of my journey is over. Now it is time to prepare myself to say good-bye to my rebellious boob…out with the old and in with the new…to move on to bigger and better things (no boob pun intended!)

My next step – surgery! See you on the other side of the knife!

June 3, 2019

 
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Posted by on August 7, 2019 in breast cancer, Uncategorized

 

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The Rebellious Boob Chronicles: My Journey, in Poetry, through the Eyes of a Friend

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If there is one thing that I am blessed with in life, it is the treasure of great family and friends! There is no way that I would have ever been able to make it this far in my journey of life as a whole, much less this adventure through breast cancer without the love and support of all who surround me. I covet every single gesture of love, support and encouragement, each prayer muttered on my behalf, every phone call, text, message and visit; every single card, note and gift.  I am honored when someone takes a moment to share with me how something I have said or written touches their heart and inspires their soul. Yesterday one of my dear girl friends carved time in her day to come and fellowship with me during my incarceration (aka…recovery time from my double mastectomy surgery – this girl was not made to stay immobile and locked inside! Yikes!) Not only did she bless me with much needed conversation and fellowship, she came bearing gifts. She had a pillow made with the above picture on it and wrote me this poem. WOW! I do not have sufficient words to express how deeply this touched my heart!

This journey has been a mixture of  beautiful roses and ferocious thorns. There have been times when I have felt like a complete and total failure as a woman (it can be challenging to your femininity when you lose your hair, your eyebrows, your eyelashes and your boobs!!), as a mother (what mom can’t take care of her children when THEY are sick??), a momsy (do you know how hard it is to tell your precious grandchildren you don’t feel like playing??), a daughter (I am thankful for a momma who takes care of me no matter what age I am!), a sister (that moment when you can’t muster up the strength to go to a family get together) a companion (ah the adjustments and grace it takes to cater to a sick girlfriend!) and a friend (I am so not used to being on the receiving end of needing help!).  In those moments of struggle, I can be my worst critic while fighting through the darkness and depression. I would think “me, positive? strong? victorious? yeah right! more like exhausted! weak! defeated!”

And then, there are those golden moments, when God sits you down and allows you to look at your self through the eyes of someone else. When He calls for a ‘pause’ in your self criticism and saturates your soul with words of reassurance. A moment that refreshes the core of your being. I share this poem with you,  this priceless gift, written for me and about me. I do a lot of writing and sharing about myself and my journey but what a gift to see myself through the eyes of someone else. As I heard the words, I sat in awe, speechless, and weeping at the goodness of a caring God and the obedience of a loving friend who was willing to be a conduit of His grace. I sat with my heart overflowing with thankfulness for those intimate moments shared between two women, with our hearts laid bare before each other. I sat there blessed, refreshed and renewed.

By Joyce Weldon, my dear friend and anointed poet

She knew her cancer would be like risking a difficult climb.
After all she was a mountain thinker
Not a valley sinker.
Her thoughts were used to soaring to new heights
She knew the value to flee or to take flight.

Now will this journey choose for her the mountain of the small place?
Will she just be satisfied with the fertile lowlands, plushes,
ready-made she face?
Throughout life she had been a friend of struggle
Maybe every once in a while to have with it a few snuggles.

But even in her broken body she continued to smile
Instead of looking back toward the valley she looked upward to the mountain with a whisper, “in a little while.”
Thinking small was not her style.
No small dreams.
No small outlook.
No small aspirations.
No small faith and no small vision.
Just a new decision.

She took the flavor of God’s spirit enhanced
Whatever lives it touches from the depth of her mind to the depths of her soul.
She let it go.

From the perspective of the heights
She gave cancer new sight
No matter the outcome to remain in steadfast, unyielding,
Unmovable, unshakable, and useful for flavoring other lives
That be sprinkled into the world cries.
In the shadow of the mountain where bushes once burned
And voices thundered and the finger of God was carved in granite
the direction of where freedom lies.

Life lives…

July 18 2019

 
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Posted by on July 19, 2019 in Uncategorized

 

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The Rebellious Boob Chronicles: Chemotherapy and Losing Your Hair

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I will began this blog by saying that it has taken me 4 ½ months to be able to complete and post this blog. I began writing it shortly after we shaved my hair off on March 4th, yet every time I sat down to pen my thoughts, I would either draw a blank or would be so overcome with emotion that I just couldn’t finish. Losing your hair isn’t just a physical side effect of chemotherapy, it is an emotional one, one that reaches down into the depths of your soul and touches the heart of your identity. It’s visible evidence that something isn’t quite right in your body. Hair loss isn’t limited to just your head either. Eventually you lose your eyebrows and your eyelashes (I miss them!) and your body hair (I won’t complain about not having to shave my legs for months!! ) It changes your appearance and it takes time to get used to it. Months later I have grown accustomed to my bald head. I’m much more comfortable being without a head covering around my family and friends, letting that bald, round head shine – especially when it’s blazing hot out and I am crawling up the trail, literally! I am able to look in the mirror and most times I don’t even bother with the fact that I have no hair. I discovered that I can take naps without having to worry about messing my hair up. I can drive with the window down and let the wind blow as much as it wants to. I can take showers at night and not have to fool with fixing my hair in the mornings, thus getting to sleep later. The perks have been many. So as I post this today, I am thankful for the progressive adjustments. I am thankful for those who contributed to my hat fund and collection and allowed me to look fashionable these past months. I am thankful that I am 3 weeks post-chemotherapy and I have a nice little layer of baby hair growing back already. I am thankful for all of the positive words and encouragement to boost my struggling self-esteem and keep me smiling. Most of all, I am thankful to finish this blog and finally get the words out of my soul that have been churning on the inside for so long. And I am thankful for YOU for sharing my journey with me.

Rebellious Boob Chronicles – Chemotherapy and Losing Your Hair

One of the things I dreaded most about chemotherapy was losing my hair. Even before it was confirmed that I had cancer, I had nightmares about being bald.  Once I received the diagnosis I would catch myself standing in front of the mirror, holding all of my hair back, trying to imagine what I would look like bald. My kids would walk by and be like…mom what are you doing? (Insert a strange look on their face)

Once the news was out and I started chemotherapy, everyone knew it was inevitable. I have the best of friends and every one would do their best to console me. “It will grow back!” or “Ah, It’s just hair!” they would say. The truth is, yes it will grow back, however to say that my hair is just hair is quite an understatement. I’ve had a love/hate relationship with my hair since it started growing 49 years ago and it became a part of who I am, a part if my identity.  I’ve had long hair, at one point it was blonde and curly.  However, the older I got and the more I began to discover who I truly am deep on the inside, the shorter and darker my hair got until finally, I found MY hairstyle and it became my icon. People who didn’t know me personally would recognize me by the infamous red streak that I wore forever. My children’s friends would say, “oh yeah, your mom is the one with the short red hair.”  Strangers would stop me and compliment me on how much they liked my hair. Well most strangers were in my favor. I remember once a man stopped me in the grocery store and felt the need to tell me that most men didn’t like women with short hair. I come a frog’s hair of letting him know that most women didn’t like men with short …., but I refrained and just told him it was okay, that I didn’t like most men and went my merry way without cutting the fool. So without much ado about nothing, I think you get the point. My hair was an important part of me.

At my first visit with my oncologist, my doctor was gracious enough to talk to me about the most common side effects of chemotherapy and how long it usually started for them to show up. Hair loss usually occurs 10 to 14 days after the first treatment. Wow. I thought I would have longer than that but I began to mentally prepare myself for the loss that was coming.  At first it was just a hair or two here and there that I would find or would stick to my hands. However, the second weekend after my first treatment, I was getting ready for an adventure and when I went to fluff my hair glue through my hair, I brought my hands down and they were covered in my dark brown locks. Ugh! Day after day the same scenario until I came to the conclusion that the inevitable was happening and it was time to take control. Thus I planned an “Ode to my hair” head shaving party for March 4th, the evening of my second chemotherapy treatment.

My kiddos, my hairdresser, and my grand babies were present and some of my awesome girlfriends came bearing gifts of wine, appetizers and desserts. I parked a chair in the center of the kitchen and the party began. The buzz of the clippers hummed a somber melody. We shared lots of laughter and a few tears were shed.  We made videos and took selfies. My oldest son, whose hair was way down his back, shaved his head also in honor of his momma. I was surrounded by tons of love and support and it made such a bittersweet event and that first glance in the mirror a little more bearable. It was done. My hair was gone. I was bald.

Now came the rush of fears. Would people look at me different? Would my boyfriend struggle with having a bald girlfriend? Would my friends avoid being seen with me? And of course, my greatest fear about it all was how would my children and grandchildren  react to having a bald momma and Momsy. I know, it sounds silly to even say that out loud, but every day and especially through this whole ordeal, they have been and always will be my greatest concern. It wasn’t long after we finished with the new hairless style that my phone starting blowing up with notifications. My children had posted some of the selfies we took on their social media. Yikes! I admit that at first I was a little shocked. I wasn’t sure that I was ready for thousands of people to see me with no hair! However, as I began to read their proclamations of love, support, and encouragement and the sweet, positive responses from others,  my heart was flooded with gratitude. They were proud of their momma, hair or no hair, and they wanted their world to know it! I was overwhelmed and the fears I had melted away. I was thankful. I was blessed beyond measure. I knew in those precious moments that no matter what I had to face through this journey that I would be okay, and more importantly, I knew they would be okay.  I knew that someday soon, I would be better than I was at this moment.

March 4, 2019

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My Kaley

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My Olivia

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My Kaler

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Getting a haircut!

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The party crowd!

 
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Posted by on July 2, 2019 in Uncategorized

 

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