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The Rebellious Boob Chronicles: A Year Ago Today…

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(I dedicate this blog to my dear friend and soul sister Brooke West who took me to all of my doctor visits, who sat with me through every minute of chemotherapy, who endured me on steroids…whoa! who laughed, cried and prayed with me, and who sent me the most powerful text message early one late December morning that inspired these words.)

They say time flies when you are having fun. I say time has a way of creeping by and flying by all at the same time whether you are having fun or not. It is hard to believe that just one year ago today I was getting ready to embark on the most challenging personal journey I have ever faced in my life. I have definitely been through some rough times in my 49 years, heck my early childhood was enough to make anyone tremble a little (but that is another blog for another time). I have lost family, friends, a marriage, a spouse. I have had my heart broke by people who were supposed to be my friend. My family has experienced the tragedy of senseless violence, we have suffered the consequences of not-always-the-smartest choices (a nice way of saying I have done some stupid stuff in my life!), and we have had the proverbial rug pulled out from under us on many occasions. I could go on and on, but I think you catch my drift that life hasn’t always been a piece of cake. The hard times have shaped me and my faith has produced a stubborn resilience that refuses to let the hardships get the best of me! However, in January of 2019, life was getting ready to throw me a hefty kick to the gut, on the most personal level, which would require me to dig deep, trust wholeheartedly in my faith and endure with the strongest determination I could muster up.

On November 21st, 2018 I went for my yearly mammogram. After receiving a bad scare in 2015 and having to go have a diagnostic mammogram and ultra sound to determine density in my right breast, I had kept up my mammograms on a regular basis regardless of the fact that I didn’t have health insurance for years (kudos to the local health department for a grant that covered mammograms for uninsured women). On November 28th I went for a complete physical with my primary care physician. I hadn’t had one of those in years and felt it was a smart move since I now had health insurance that covered such things, and I hadn’t been feeling quite like myself here and there. The good news is that my physical results were fabulous! All of my blood work came back perfect and my doctor said I was one of the healthiest women she knew. The bad news is my mammogram came back showing some questionable areas in my right breast, and once again, a diagnostic mammogram and ultra sound was ordered. I would like to say that I was as calm as a cucumber, but I won’t even try to downplay the fear that ravishes a woman’s heart when she is told further tests need to be done. Not to mention that over the course of 2018 I had noticed a change in the pea size mass that was diagnosed as density in 2015. It was now about the size of a nickel but according to google it was nothing, (seriously, of course I googled it!!) but deep down inside, I was scared. On January 3rd 2019, I went in for my testing. It wasn’t anything I was unfamiliar with, but this time the atmosphere seemed a little more intense. The mammographer appeared a little more serious and the ultrasound tech took an extensive amount of time checking out my right side and under my right arm. Finally, she called in the radiologist so that she could sit down with me face to face, eye level to eye level, and tell me ever so gently that it was expedient that I go for a biopsy.

I left the office feeling overwhelmed and as I drove back to work, I cried a little and prayed a lot. My thoughts rushed to my children and I had no I idea how I would tell them that their mother may have breast cancer. I spent the next week praying profusely and diplomatically telling God why I DID NOT need to walk through breast cancer at this time in my life. No just NO! Of course I didn’t want to have to fight the battle, but my reasons weren’t selfish ones, first and foremost I did not want my children to have to suffer through another parent having cancer. Please Lord, not at this time in our lives. Give us a little more time to grow, to heal, to enjoy life. I am strong in my faith and firmly believe that the God I serve can work miracles and remove anything out of my body that He chooses. Yes Lord, work a miracle on my behalf, after all my God moves mountains, right?!?

A year ago today, on January 10th, 2019, I was dreadfully waiting for the sun to rise as I rose out of bed early to get ready to go to my scheduled biopsy. One of my most dear friends and soul sister’s was taking me so that I didn’t have to go alone. I made my coffee, read my devotion, prayed and again recited to God at what a testimony it would be and how I would so praise Him if He would just remove these freaking lumps in my breast (yep, ultra sound showed two!).  I opened my Facebook and the first thing I saw was a memory from my ‘Dear Christy from God’ letters on January 10, 2018 (exactly one year prior) that said:

“Dear Christy, when I choose not to move the mountain, then what?” ~God~.

I knew in that moment what the outcome of the biopsy would be before they ever pierced my skin. I knew in that moment that my life and my children’s lives were getting ready to change drastically. I honestly didn’t know what all it would involve, but I knew from this moment on that my life would be on a different time table – you know, like how we measure time as BC (before Christ) and AD (anno domini – the year of our Lord) – now for me it would be “before I got breast cancer” and “after I survived breast cancer.” I sighed deeply and read the memory again:

Dear Christy, when I choose not to move the mountain, then what? ~God~.
Dear God, well, I guess we climb the dang mountain, that’s what. ~Christy~

And that is exactly what we did.

It took eight viciously long days for the doctor to call and ask me to come in for my results. Tom Petty nailed it on the head when he said “the waiting is the hardest part!” My dear friend and soul sister went with me to hear the results and we all had to chuckle a little as my doctor recited again that I was one of the healthiest women she knew…but…the biopsy showed that I had breast cancer.  My first reaction was “well hell” and after listening to what the next few weeks of my life would be like with all the doctor visits they would line up for me, Brooke and I both agreed on one thing; My God, the one in whom I believe in and love wholeheartedly, the one who loves me more than I can imagine, the one who flung the starts into place and measured the depths of the seas in the palm of his hand, the One who is good all the time, He was not at all surprised by this diagnosis. The bargaining was over, the course had been set and if He wasn’t going to move the mountain, then in no uncertain terms He was going to have to show up and help me climb it. On this side of the battle I can say that not only did God show up, but He showed out!

I have spent the past year of my life climbing this mountain called breast cancer. I have gone through two port surgeries, 5 months of chemotherapy, a double mastectomy, 25 radiation treatments, and reconstructive surgery. I lost my hair, my dignity, my hot, muscular beast of a body I had worked so hard for (okay, maybe I wasn’t so hot to start with but it’s my story and I’m sticking to it! J). My battle isn’t quite over yet as I am still doing immunotherapy infusions every three weeks. I am getting ready to take a preventative pill for a year and then another preventative pill for five years. Hopefully I will only have one more surgery left to complete reconstruction. All in all, it is safe to say that it has been a wing-dinger of a year! I have felt strong and I have felt weak. I have felt empowered and I have felt helpless. I have been brave and I have been scared. I have been challenged physically, mentally and emotionally. I can say that being on this side of the battle feels much better than where I was one year ago and, despite all of the losses and struggles,  I have experienced some pretty awesome things through all of the madness. I have been surrounded by the most wonderful support system of family and friends, saturated in prayers and positive thoughts by a countless number of people and received more acts of kindness than I deserve. I have met some of the most precious folks along the way who had fought this same battle, strangers who became friends almost instantly because of the special bond we share. In the best of times and in the worst of times, I know without a doubt, that I have not been alone in this struggle for one single minute.

By the grace of my Almighty God, I was not only able to continue to work full time, I was also able to do my job with a passionate fervor and reach and exceed the goals that were set before me. I have traveled to more states this year than I have in all my life and I have watched the sun rise and set on the east coast and the west coast. I was able to experience a sweet beach vacation and a grandiose out west adventure, celebrating my 50th birthday watching the sun come up over the Mesa Arch in Canyonlands, Utah. In the midst of fighting cancer, I logged 3,284,177 steps and I was on the trail 83 days, only missing  a handful of adventures due to treatments and side effects. The most difficult year of my life has also been the most glorious of adventures! And I give all praise, honor and glory to the God in whom I gave my heart to so many years ago. His joy IS my strength!

Some would argue that if He was such a good God, why didn’t He move the mountain like I had begged him too? Oh my, as I type this I shudder at the things I would have missed if He would have done things my way. Am I saying that I am thankful for cancer? NEGATIVE GHOSTRIDER! However,  had I not walked this journey, I would have missed the recognition of His mighty hand weaving the strands of my life and guiding my every step. In 2012 God sparked a desire in me for the outdoors, and after my first hike in June 2013, a passion for hiking and adventure was birthed in my soul. I can name 3 things that tried to divert my passion through the years, but God in His goodness would always just redirect my steps and lead me to another place til eventually I found my Tribe. From 2016 through 2018 I spent weekend after weekend on the trail and with each step God was with me, honing my heart for maximum strength, honing muscle and sinew to perfection, building up every aspect of my body, strengthening my mind. healing my soul, and preparing me for a battle that would inevitably attack it all. He knew that on January 18, 2019 when I received the news that I had breast cancer that I would need to be in the best physical, mental and spiritual shape that I had ever been in to endure and come out victorious. Insert that I worked for 13 years without health insurance, and in August 2018 I was hired at my new job that offers incredible benefits, my health insurance kicked in on October 1, just 3 short months before my diagnosis.

A year ago today breast cancer was my diagnosis but it was never my destiny! It is just a path to another purpose and I hold fast to the peace, joy and thanksgiving that fill my soul. Today, on January 10, 2020 I open my eyes to a new day, a new year, a new decade and I know beyond a shadow of a doubt that I am better, much better than I was…a year ago today.

 
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Posted by on January 10, 2020 in breast cancer

 

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The Rebellious Boob Chronicles: The Anatomy of a Selfie

 

My hair is gone.
My eyebrows and eyelashes are thinning.
My cheeks are puffy.
The toxins are breaking my skin out.
I’ve lost weight.
My feet are swollen.
Some days I look in the mirror and I scarcely recognize myself.
I see a cancer patient.
I dig deep.
I hear the inner voice.
I pray for grace.
I pray for joy.
I find strength.
And I remember.
I am Christy.
I am a fighter.
I will prevail.
I will be cancer free and I will be better than I was before I began this journey.
And I smile.

April 11, 2019

 
 

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The Rebellious Boob Chronicles: Round 1 – Chemotherapy doesn’t care how tough you are!

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Life has a way of shaping you. Situations and circumstances can make or break you. I decided early in life that I wouldn’t let the hardships break me so I developed this deep sense of determination to always overcome. My mother was my grand example. She fought through many years of severe domestic violence to come out standing incredibly strong and successfully raise 4 children all by herself. She worked 2 and 3 jobs at a time, always made ends meet and never gave up despite the fact that I am sure she felt like it numerous times.

Over the years if I have heard it said once, I’ve heard it said many times, “you are tough!” I’ve been labeled a strong woman by many, and I strive to wear that mantle well. Not in an arrogant fashion, but with a quiet confidence knowing that my strength and perseverance comes from a higher source and that there are 6 precious souls that depend on my abilities to always make it through. Being strong is crucial.

On January 18, 2019 I was diagnosed with breast cancer. Although I wasn’t completely taken by surprise, I knew something was not going exactly right in my body, I found ironic humor in the fact that recent blood work showed that I was healthy as a horse. Everything was in perfect range! I have been blessed for the past several years to enjoy the outdoors and have spent the last two years participating in numerous intense (and sometimes completely outrageous!) adventuring. I have also been very conscious of the nutrition I have fed my body and soul and the end result was a strong physical, mental and spiritual being. I have felt the best I have ever felt in my life! All the while I am out having the time of my life adventuring; little did I know that my immune system was building itself to mammoth strength. I was unaware that it was fighting hard for me to keep the cancer contained in my breast, hallelujah!

When I was given my treatment plan of 6 rounds of chemotherapy before surgery, I determined immediately to keep a positive attitude and outlook. Everyone who heard about the diagnosis and treatment shouted the words of encouragement to me – You are tough! You got this! You will breeze through this! And I believed that with all of my heart. So here I went to the first treatment with the mindset that, yes, I AM a strong women and not even chemotherapy is going to slow me down much less stop me! (ROFLOL!!  I know right! I am always the ambitious one!).

My first treatment was Monday, February 11, 2019. The treatment took 9 hours, whew! But everything went well. My doctor told me that I needed to keep up my exercise through all of this, so I stepped out of the car, went into the house to put up my stuff, and headed out the door for a mile walk. I felt victorious! Tuesday, Wednesday and Thursday passed, I worked each day, and other than feeling like I was a jacked up rabbit on speed that suddenly felt like I could nap for days (totally due to the steroid and nausea meds regime to prevent sickness – which worked!) I felt good. I was conquering this thing called chemotherapy. Then Friday came…and the rude awakening that chemotherapy doesn’t care how tough you are! It does not take into consideration all of your accomplishments, victories, and achieved goals. It doesn’t care if you are a feisty, strong spirited, independent woman. It doesn’t care that you had big plans to hike for the weekend. When it decides to have its way with you, it does, and with a vengeance. These are my lessons learned from round 1 of chemical warfare on the terrorist that is residing in my rebellious boob…

When the chemicals decide they are ready to exit your body…you better have enough Imodium AD on hand to stop 20 elephants. Otherwise you will find yourself becoming intimate with your bathroom and losing 10 pounds in less than 48 hours.

Coconut water is a great source of hydration, unless you drink too much. Then it acts like a natural laxative – which isn’t good if you are experiencing chemo dump! Ugh!

Protein meal replacement shakes are a great source of nutrition when you don’t feel like eating because your mouth has been attacked by the chemical warfare and you feel like you have eaten shards of glass for breakfast. Unless…you are lactose intolerant and they are lactose based. Yeah you guessed it…hello bathroom!

A cold bowl of ice cream tastes so good when your mouth is on fire…again unless you are lactose intolerant and…well, refer to the above statement!

Chemicals exiting your body burn like a forest fire out of control. Thank God I wasn’t throwing up and it wasn’t my esophagus feeling like a marriage of gasoline and matches. ( that is all I will say about that!)

Muscle spasms are no fun! Especially if you are dehydrated from running to the bathroom for two days because of chemotherapy, coconut water and lactose based foods. Except for a cramp in my calf or toe over the years, I had never had a muscle spasm in 49 years and had no clue that something could seize up your whole body make you feel like someone was stabbing a knife into your pelvic bone, all the while pulling your muscles all the way to your chest tighter than a rubber band. Holy freaking moly!

Chemotherapy can cause your mouth to sizzle like you have eaten a bowl full of pop rocks (remember that childhood candy??) And then suddenly, out of nowhere, you can wake up feeling like you have swallowed a desert of cacti. Two words…miracle mouthwash. HAVE IT ON HAND!

No matter how much of a go-getter you are, you WILL take a nap almost daily and you will like it!

Do not, I repeat, do not eat a Hershey’s’ kiss 3 days after having chemotherapy. It will taste like rotten cardboard and you will cry a little because chocolate should never, ever, ever taste like that! (Wait two weeks and indulge in the M&M’s your friends bring you, you will love them as much as you always have and it will be sunshine to your soul!)

Chemotherapy is not fond of hair. That is good news for your armpits and legs,I don’t have to shave for days and days – woot woot!  However that is bad news for your head. Warning, although you know it will grow back eventually, you WILL cry when your hair starts to fall out in handfuls. Thank God and friends for pretty scarves and head covers.

Chemotherapy doesn’t care if your child has the flu. It will not allow you to take care of him and it won’t care that your heart is broke when he has to go stay somewhere else while he is contagious.

Do not, I repeat, DO NOT bite your lip the night before chemotherapy. Remember that it takes your body longer to heal because your immune system is being annihilated. If you have this protruding sore on the inside of your lip, chances are it will get in your way and you WILL bite it over and over. You will cringe every time that you do and it will get infected and hang around way too long!

Chemotherapy doesn’t bother that you never had had allergies in your life. You will wake up with a new found allergy and your eyes will water at the sight of daylight and your nose will drip constantly like a leaking faucet.

Chemotherapy and Mother Nature are wicked friends when they visit you at the same time…no other words needed.

Round 1 of chemotherapy was definitely a learning experience. I had no clue what to expect and there were moments when the side effects hit that I felt ignorant, ashamed, defeated and as helpless as a new born baby. The good news is I am a quick learner. Perseverance and determination are my lifelong companions. I take note of every little detail and for round two I am much more prepared! Does that mean I will be tougher than the chemicals that are pumping through my veins? Bahahaha…NO. I will just be smarter (and a little more pissed off than I originally was the first time around). My prayers will be that much more specific and I will fight with knowledge and diligence, and eventually, I will win this battle no matter how much chemotherapy doesn’t care.

So, let round 2 of chemical warfare on the terrorist that has invaded my body begin…

 
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Posted by on March 5, 2019 in breast cancer, Uncategorized

 

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